ArticleHealth expectations : an international journal of public participation in health care and health policy2017
How and why should we engage parents as co-researchers in health research? A scoping review of current practices.
Article in Health expectations : an international journal of public participation in health care and health policy, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 105 papers, 5 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
105 citing papers in PubMed, 5 syntheses or guidelines pooled it.
- Facilitators of and barriers to patient and public involvement in mental health research within university settings: a systematic review and meta-synthesis.Psychological medicine · 2025Pooled it
- Pooled it
- Evaluation of research co-design in health: a systematic overview of reviews and development of a framework.Implementation science : IS · 2024Pooled it
- Participatory research with carers: A systematic review and narrative synthesis.Health expectations : an international journal of public participation in health care and health policy · 2024Pooled it
- Engaging Parents in Technology-Assisted Interventions for Childhood Adversity: Systematic Review.Journal of medical Internet research · 2024Pooled it
- Effectiveness of Alberta Family Integrated Care on infant length of stay in level II neonatal intensive care units: a cluster randomized controlled trial.BMC pediatrics · 2020Trial
- Engaging Parents in Healthcare Interventions to Improve Paediatric Patient Safety: A Scoping Review.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- The true experts: codeveloping a preventive psychological intervention for postsurgical pain with patients and caregivers.Pain reports · 2026Article
- Developing a culturally relevant bereavement needs assessment tool (CANCOPE-PI) for caregivers of children with cancer in India: a participatory research approach.Research involvement and engagement · 2026Article
- Female breast cancer survivor narratives on paths to healing after the conclusion of primary treatment: A qualitative study.Journal of cancer survivorship : research and practice · 2026Article
- Families and patients as partners in hospital-based research.Journal of hospital medicine · 2026Article
- The Visible Difference Parenting Toolkit: development of an ACT-based intervention to improve the well-being of parents and caregivers of children with appearance-affecting conditions and injuries.Journal of pediatric psychology · 2026Article
- Co-developing a complex transfer intervention with parents: a case study of involvement and parental experience.Research involvement and engagement · 2026Article
- Methods of Engaging Interest-Holders in Healthcare Evidence Syntheses: A Scoping Review.Cochrane evidence synthesis and methods · 2026Review
- Navigating care together: developing a collaborative checklist to improve care for children with intellectual disabilities.Research involvement and engagement · 2025Article
- Creating a collaborative and impactful research environment: community partner reflections on the DeStress-II study.Research involvement and engagement · 2025Article
- A novel framework for operationalising patient and public involvement: lessons from designing an AI-informed exercise prescription grant.Research involvement and engagement · 2025Article
- A systematic review of co-production approaches that involve family members, loved ones, or carers in the development of mental health or substance use resources/interventions.Research involvement and engagement · 2025Review
- Progressing participatory research with young people in India: how a youth advisory board supported a large mental health project in Bengaluru.Research involvement and engagement · 2025Article
- Parental involvement in paediatric patient safety incidents in general practice: a cross-sectional study.The British journal of general practice : the journal of the Royal College of General Practitioners · 2025Article
45 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundThe importance of engaging parents in health research as co-researchers is gaining growing recognition. While a number of benefits of involving parents as co-researchers have been proposed, guidelines on exactly how effective engagement can be achieved are lacking. The objectives of this scoping review were to (i) synthesize current evidence on engaging parents as co-researchers in health research; (ii) identify the potential benefits and challenges of engaging parent co-researchers; and (iii) identify gaps in the literature.
methodsA scoping literature review was conducted using established methodology. Four research databases and one large grey literature database were searched, in addition to hand-searching relevant journals. Articles meeting specific inclusion criteria were retrieved and data extracted. Common characteristics were identified and summarized.
resultsTen articles were included in the review, assessed as having low-to-moderate quality. Parent co-researchers were engaged in the planning, design, data collection, analysis and dissemination aspects of research. Structural enablers included reimbursement and childcare. Benefits of engaging parent co-researchers included enhancing the relevance of research to the target population, maximizing research participation and parent empowerment. Challenges included resource usage, wide-ranging experiences, lack of role clarity and power differences between parent co-researchers and researchers. Evaluation of parent co-researcher engagement was heterogeneous and lacked rigour.
conclusionsA robust evidence base is currently lacking in how to effectively engage parent co-researchers. However, the review offers some insights into specific components that may form the basis of future research to inform the development of best practice guidelines.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.