ArticleThe Gerontologist2017
It's Interpersonal: Family Relationships, Genetic Risk, and Caregiving.
Article in The Gerontologist, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers, 1 of them a synthesis that pooled it.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
13 citing papers in PubMed, 1 synthesis or guideline pooled it.
- A systematic review of theory-informed strategies used in interventions fostering family genetic risk communication.Patient education and counseling · 2022Pooled it
- An e-Coaching Intervention for Family Carers to Enhance Well-Being and Resilience Through Self-Help Strategies: Protocol for a Randomized Controlled Trial.JMIR research protocols · 2026Article
- Article
- Health-related roles of older generations in families with inherited genetic conditions: a scoping review.Journal of community genetics · 2024Article
- Interconnected social convoys: Understanding health and well-being through linked personal networks.Advances in life course research · 2023Article
- Size and composition of family networks of decedents: A nationwide register-based study.Palliative medicine · 2021Article
- "Being proactive, not reactive": exploring perceptions of genetic testing among White, Latinx, and Pacific Islander Populations.Journal of community genetics · 2021Article
- The structure of emotional support networks in families affected by Lynch syndrome.Network science (Cambridge University Press) · 2020Article
- Primary Caregivers in a Network Context.The journals of gerontology. Series B, Psychological sciences and social sciences · 2020Article
- Intergenerational exchange of healthful eating encouragement: Consideration of family ancestry and disease history.Families, systems & health : the journal of collaborative family healthcare · 2019Article
- Legacies and Relationships: Diverse Social Networks and BRCA1/2 Risk Management Decisions and Actions.Journal of family nursing · 2019Article
- Information and support needs of young women regarding breast cancer risk and genetic testing: adapting effective interventions for a novel population.Familial cancer · 2018Article
- Interpersonal Correlates of Dementia Caregivers' Emotional Support Networks: Considering Family History.Research on agingArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
1 author.
Funding
Abstract
My research program considers family relationships across the life course: in early life, with a focus on disease prevention-leveraging genetic risk information and relationships to motivate health-promoting behaviors-and in later life, with a focus on informal caregiving-identifying characteristics of those most vulnerable to, or resilient from, caregiver stress. It is fortuitous, if not tragic, then, that my research and personal worlds collided during my mother's final 8 months of life. Here, I discuss how this experience has shifted my thinking within both arms of my research program. First, I consider the state of the science in family health history, arguing that the current approach which focuses on an individual's first- and second-degree relatives does not take us far enough into the relational landscape to activate communal coping with disease risk. Second, I discuss caregiving from a family systems perspective. My family's experience confirmed the importance of using a systems approach and highlighted a need to identify underlying variability in members' expectations of caregiving roles. In so doing, I capture the significance of understanding the multiple perspectives that frame a context in which families adapt and cope with risk and disease diagnoses.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.