ArticleNeurology and therapy2016
Priority of Treatment Outcomes for Caregivers and Patients with Mild Cognitive Impairment: Preliminary Analyses.
Article in Neurology and therapy, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 22 papers, 1 of them a synthesis that pooled it.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
22 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Everyday Impact of Cognitive Interventions in Mild Cognitive Impairment: a Systematic Review and Meta-Analysis.Neuropsychology review · 2016Pooled it
- Online Personalised Training in Memory Strategies for Everyday (OPTIMiSE) Program for Older Adults with Cognitive Concerns: Pilot Study Protocol.Journal of Alzheimer's disease reports · 2021Trial
- Comparative Effectiveness of Behavioral Interventions on Quality of Life for Older Adults With Mild Cognitive Impairment: A Randomized Clinical Trial.JAMA network open · 2019Trial
- Definitions of Person-Centeredness for Persons With Dementia in the United States: A Scoping Review.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2026Article
- Maximizing the "Functional" in the Functional External Memory Aid Tool for Patient-Centered Treatment Planning in Mild Cognitive Impairment.American journal of speech-language pathology · 2024Article
- Life-long music and dance relationships inform impressions of music- and dance-based movement therapies in individuals with and without mild cognitive impairment.medRxiv : the preprint server for health sciences · 2024Article
- Understanding treatment goals and their application in clinical trial design for patients with Alzheimer disease and caregivers.Drugs in context · 2024Article
- Assessing What Matters to People Affected by Alzheimer's Disease: A Quantitative Analysis.Neurology and therapy · 2023Article
- Behavioral Interventions in Mild Cognitive Impairment (MCI): Lessons from a Multicomponent Program.Neurotherapeutics : the journal of the American Society for Experimental NeuroTherapeutics · 2022Review
- Identifying relevant outcomes in the progression of Alzheimer's disease; what do patients and care partners want to know about prognosis?Alzheimer's & dementia (New York, N. Y.) · 2021Article
- Priorities and Preferences of People Living with Dementia or Cognitive Impairment - A Systematic Review.Patient preference and adherence · 2021Review
- Psychometric properties of the self-efficacy for managing mild cognitive impairment scale.International journal of geriatric psychiatry · 2021Article
- Traumatic stress as a mediator of quality of life and burden in informal caregivers of amputees due to diabetic foot: a longitudinal study.Health psychology report · 2021Article
- Cross-cultural adaptation and validation of the Amsterdam Instrumental Activities of Daily Living questionnaire short version German for Switzerland.Health and quality of life outcomes · 2020Article
- Functional ability is associated with higher adherence to behavioral interventions in mild cognitive impairment.The Clinical neuropsychologist · 2020Article
- Outcomes tested in non-pharmacological interventions in mild cognitive impairment and mild dementia: a scoping review.BMJ open · 2020Article
- Health Outcome Prioritization in Alzheimer's Disease: Understanding the Ethical Landscape.Journal of Alzheimer's disease : JAD · 2020Review
- What outcomes are important to patients with mild cognitive impairment or Alzheimer's disease, their caregivers, and health-care professionals? A systematic review.Alzheimer's & dementia (Amsterdam, Netherlands) · 2019Article
- A Survey of Patient and Partner Outcome and Treatment Preferences in Mild Cognitive Impairment.Journal of Alzheimer's disease : JAD · 2018Article
- Behavioral Interventions to Prevent or Delay Dementia: Protocol for a Randomized Comparative Effectiveness Study.JMIR research protocols · 2017Article
Corrections and comments
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Authors and funding
7 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
introductionThe patient-centered movement advocates for greater attention to the outcomes that matter most to patients and their families. In neurodegenerative disease, determination of patient and caregiver priorities has received scant attention in part because dementia patients are deemed unreliable reporters. However, people with mild cognitive impairment (MCI) likely retain capacity to report their preferences.
methodsIn two separate MCI cohorts, we conducted preliminary analyses of patient and caregiver priorities among seven patient and five caregiver outcomes of the HABIT
resultsVia interview and paper-and-pencil reporting both patient and caregiver respondents' ranked patient and caregiver quality of life and patient self-efficacy as highest priorities, ranking them ahead of patient and caregiver mood, patient functional status, patient distressing behaviors and caregiver burden. Patients and caregivers tended to value the outcomes for their loved ones higher than their own outcomes.
conclusionCaregivers appeared to be reasonable, but not perfect, proxies for patient reports. Additional research with larger cohorts and a more comprehensive range of outcomes is needed.
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