Evidence map›Paper›PMID 27496234›Full record

ArticleBMJ open2016

Combined cognitive-behavioural and mindfulness programme for people living with dystonia: a proof-of-concept study.

H Sandhu, C J Bernstein, G Davies, N K Y Tang, M Belhag, A Tingle, M Field, J Foss, A Lindahl, M Underwood and 1 more

Open access · goldAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in BMJ open, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed, 1 pooled it
0.9field-weighted citation impact, top 24% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

6 citing papers in PubMed, 1 synthesis or guideline pooled it, 15 citations in OpenAlex.

  1. Pooled it
  2. Review
  3. Article
  4. Article
  5. Article
  6. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors at 3 institutions in 1 country.

H SandhuClinical Trials Unit, Warwick Medical School, University of Warwick, Coventry, UK.
C J BernsteinDivision of Health Sciences, Warwick Medical School, University of Warwick, Coventry, UK.
G DaviesUniversity of Southampton, Southampton, UK.
N K Y TangDepartment of Psychology, University of Warwick, Coventry, UK.
M BelhagDepartment of Neurology, University Hospitals Coventry and Warwickshire NHS Trust, Coventry, UK.
A TingleThe Dystonia Society (West Midlands Group), West Midlands, UK.
M FieldThe Dystonia Society (West Midlands Group), West Midlands, UK.
J FossDepartment of Computer Science, University of Warwick, Coventry, UK.
A LindahlDepartment of Neurology, University Hospitals Coventry and Warwickshire NHS Trust, Coventry, UK.
M UnderwoodClinical Trials Unit, Warwick Medical School, University of Warwick, Coventry, UK.
D R EllardClinical Trials Unit, Warwick Medical School, University of Warwick, Coventry, UK.
University of Warwick · GBUniversity Hospitals Coventry and Warwickshire NHS Trust · GBUniversity of Southampton · GB

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectivesTo design and test the delivery of an intervention targeting the non-motor symptoms of dystonia and pilot key health and well-being questionnaires in this population.

designA proof-of-concept study to test the delivery, acceptability, relevance, structure and content for a 3-day group residential programme for the management of dystonia.

settingParticipants were recruited from a single botulinum toxin clinic. The intervention was delivered in the community.

participants14 participants consented to take part (2 withdrew prior to the starting of intervention). The average age was 60 years (range 44-77), 8 of whom were female. After drop-out, 9 participants completed the 3-day programme.

interventionA 3-day group residential programme. PRIMARY AND SECONDARY OUTCOME MEASURES: Process evaluation and interviews were carried out before and after the intervention to explore participant's views and expectations, as well as experiences of the intervention. Select questionnaires were completed at baseline, 1-month and 3-month follow-up.

resultsAlthough participants were not sure what to expect from the programme, they found it informative and for many this together with being in a group with other people with dystonia legitimised their condition. Mindfulness was accepted and adopted as a coping strategy. This was reflected in the 1-month follow-up.

conclusionsWe successfully delivered a 3-day residential programme to help those living with dystonia manage their condition. Further improvements are suggested. The quantitative outcome measures were acceptable to this group of patients with dystonia.

Indexed as

Adaptation, PsychologicalCognitive Behavioral TherapyMindfulnessAdultAgedDystoniaFemaleHumansInterviews as TopicMaleMiddle AgedProof of Concept StudyPsychiatric Status Rating ScalesQualitative ResearchQuality of LifeResidential TreatmentBehaviour changeCBTDystoniaMindfulnessSelf management

Identifiers

PMID27496234
PMCPMC4985914
OpenAlexW2497451540

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.