Evidence map›Paper›PMID 27490147›Full record

ReviewCurrent opinion in supportive and palliative care2016

Inspiring change: humanities and social science insights into the experience and management of breathlessness.

Rebecca Oxley, Jane Macnaughton

Registry-linked trialAbstract readReview
In one paragraph

Review in Current opinion in supportive and palliative care, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT07648082 (Exploring Differences in Breathlessness Perceptions Within Respiratory Diseases), which is not on this map. Cited by 7 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT07648082 recruitingnot on this mapstarted 2025, after this paper: background citation

Exploring Differences in Breathlessness Perceptions Within Respiratory Diseases

TypeobservationalSponsorUniversity Hospitals, LeicesterRan2025 to 2026Enrolled75ConditionsChronic Obstructive Pulmonary Disease (COPD), Asthma (Diagnosis), Interstitial Lung Disease (ILD), Bronchiectasis
3 · Its place in the literature

Who cites it

7 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Trial
  3. Article
  4. Article
  5. Article
  6. Chronic breathlessness: re-thinking the symptom.The European respiratory journal · 2018
    Article
  7. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

2 authors.

Rebecca OxleyaDepartment of Anthropology, Centre for Medical HumanitiesbCentre for Medical Humanities, School of Medicine, Pharmacy and Health, Durham University, Durham, England, UK.
Jane Macnaughton

Funding

Wellcome Trust 103339
6 · The paper itself

Abstract

purpose of reviewBreathlessness can be debilitating for those with chronic conditions, requiring continual management. Yet, the meaning of breathlessness for those who live with it is poorly understood in respect of its subjective, cultural, and experiential significance. This article discusses a number of current issues in understanding the experience of breathlessness. RECENT

findingsEffective communication concerning the experience of breathlessness is crucial for diagnosis, to identify appropriate treatment, and to provide patients with the capacity to self-manage their condition. However, there is an evident disconnect between the way breathlessness is understood between clinical and lay perspectives, in terms of awareness of breathlessness, the way symptoms are expressed, and acknowledgement of how it affects the daily lives of patients. SUMMARY: The review highlights the need for integrated multidisciplinary work on breathlessness, and suggests that effective understanding and management of breathlessness considers its wider subjective and social significance.

Indexed as

Adaptation, PsychologicalAwarenessChronic DiseaseCultural CharacteristicsDyspneaHealth Knowledge, Attitudes, PracticeHumansInterprofessional RelationsSelf CareSocial Stigma

Identifiers

PMID27490147
PMCPMC4974063

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.