ArticleJournal of nursing scholarship : an official publication of Sigma Theta Tau International Honor Society of Nursing2016
Recommendations of Common Data Elements to Advance the Science of Self-Management of Chronic Conditions.
Article in Journal of nursing scholarship : an official publication of Sigma Theta Tau International Honor Society of Nursing, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. An erratum has been issued. Cited by 42 papers, 2 of them syntheses that pooled it.
What it found
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
42 citing papers in PubMed, 2 syntheses or guidelines pooled it, 86 citations in OpenAlex.
- Self-management interventions in systemic sclerosis: A systematic review.Research in nursing & health · 2021Pooled it
- A Systematic Review of Reviews Evaluating Technology-Enabled Diabetes Self-Management Education and Support.Journal of diabetes science and technology · 2017Pooled it
- Multimodal Chronic Pain Therapy for Adults via Smartphone: Randomized Controlled Clinical Trial.Journal of medical Internet research · 2022Trial
- The Effect of an HIV Self-Management Intervention on Neurocognitive Behavioral Processing.Western journal of nursing research · 2019Trial
- Two Family Interventions to Reduce BMI in Low-Income Urban Youth: A Randomized Trial.Pediatrics · 2019Trial
- Factors influencing patient activation among patients with cancer: A scoping review.Asia-Pacific journal of oncology nursing · 2026Review
- Adopting common data elements (CDEs) for the National Trauma Research Repository (NTRR): the results of an epidemiology Delphi survey.Trauma surgery & acute care open · 2026Article
- Adopting common data elements (CDEs) for the National Trauma Research Repository (NTRR): the results of a social determinants of health Delphi survey.Trauma surgery & acute care open · 2026Article
- Using a Heuristic Tool to Improve Symptom Self-Management in Adolescents and Young Adults With Cancer: Protocol for a Randomized Controlled Trial.JMIR research protocols · 2025Article
- Aspects of Self-Management After Solid Organ Transplantation-A Scoping Review.Nursing reports (Pavia, Italy) · 2025Review
- Advancing Global Cancer Symptom Science: Insights and Strategies From the Inaugural Cancer Symptom Science Expert Meeting.Oncology nursing forum · 2025Article
- Advancing Global Cancer Symptom Science: Insights and Strategies from the Inaugural Cancer Symptom Science Expert Meeting.Seminars in oncology nursing · 2025Article
- Adapting and Evaluating a Theory-Driven, Non-Pharmacological Intervention to Self-Manage Pain.Healthcare (Basel, Switzerland) · 2024Article
- The Australian Traumatic Brain Injury Initiative: Statement of Working Principles and Rapid Review of Methods to Define Data Dictionaries for Neurological Conditions.Neurotrauma reports · 2024Article
- Methods Used in the Development of Common Data Models for Health Data: Scoping Review.JMIR medical informatics · 2023Article
- A Comprehensive Self-Management Intervention for Inflammatory Bowel Disease (CSM-IBD): Protocol for a Pilot Randomized Controlled Trial.JMIR research protocols · 2023Article
- Pilot study of implementing the Shared Healthcare Actions & Reflections Electronic systems in Survivorship (SHARE-S) program in coordination with clinical care.Cancer medicine · 2023Article
- Feasibility of Systems Support Mapping to guide patient-driven health self-management in colorectal cancer survivors.Psychology & health · 2023Article
- Self-management in adults after solid-organ transplantation: a scoping review protocol.BMJ open · 2023Article
- Guiding Documents for Engaging with Remote Chronic Disease Management Programs as a Healthcare Provider: A Scoping Review.International journal of telerehabilitation · 2023Article
Corrections and comments
- Erratum issuedERRATA.2017
Authors and funding
14 authors at 11 institutions in 1 country.
Funding
Abstract
purposeCommon data elements (CDEs) are increasingly being used by researchers to promote data sharing across studies. The purposes of this article are to (a) describe the theoretical, conceptual, and definition issues in the development of a set of CDEs for research addressing self-management of chronic conditions; (b) propose an initial set of CDEs and their measures to advance the science of self-management; and (c) recommend implications for future research and dissemination. DESIGN AND
methodsBetween July 2014 and December 2015 the directors of the National Institute of Nursing Research (NINR)-funded P20 and P30 centers of excellence and NINR staff met in a series of telephone calls and a face-to-face NINR-sponsored meeting to select a set of recommended CDEs to be used in self-management research. A list of potential CDEs was developed from examination of common constructs in current self-management frameworks, as well as identification of variables frequently used in studies conducted in the centers of excellence.
findingsThe recommended CDEs include measures of three self-management processes: activation, self-regulation, and self-efficacy for managing chronic conditions, and one measure of a self-management outcome, global health.
conclusionsThe self-management of chronic conditions, which encompasses a considerable number of processes, behaviors, and outcomes across a broad range of chronic conditions, presents several challenges in the identification of a parsimonious set of CDEs. This initial list of recommended CDEs for use in self-management research is provisional in that it is expected that over time it will be refined. Comment and recommended revisions are sought from the research and practice communities. CLINICAL RELEVANCE: The use of CDEs can facilitate generalizability of research findings across diverse population and interventions.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.