ArticleJournal of adolescent and young adult oncology2017
Care Transitions in Childhood Cancer Survivorship: Providers' Perspectives.
Article in Journal of adolescent and young adult oncology, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers, 4 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
17 citing papers in PubMed, 4 syntheses or guidelines pooled it, 34 citations in OpenAlex.
- The Impact of Social Determinants on Healthcare Transition Readiness Among Adolescent and Young Adult Childhood Cancer Survivors: A Mixed Methods Systematic Review.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Pooled it
- Transition from pediatric to adult follow-up care in childhood cancer survivors-a systematic review.Journal of cancer survivorship : research and practice · 2021Pooled it
- Transition of care in pediatric oncohematology: a systematic literature review.Acta bio-medica : Atenei Parmensis · 2020Pooled it
- Survivorship Care After Childhood Cancer: A Systematic Review of Reported Barriers and Facilitators.Cancer control : journal of the Moffitt Cancer CenterPooled it
- Neuropsychological function in childhood cancer patients and adult survivors of childhood cancer.Journal of clinical and experimental neuropsychology · 2025Review
- Identifying concerns and needs in AYA survivors of pediatric cancer: a scoping review.Frontiers in psychology · 2025Review
- Features of Studies on Transition Interventions for Childhood Cancer Survivors: A Scoping Review.Cancers · 2024Article
- Examining the Barriers and Opportunities for Human Papillomavirus Vaccine Delivery in Cancer Care Settings: A Mixed-Methods Study.Cancer prevention research (Philadelphia, Pa.) · 2023Article
- Optimizing the implementation of a multisite feasibility trial of a mind-body program in acute orthopedic trauma.Translational behavioral medicine · 2022Article
- Information needs of Malaysian parents of children with cancer: A qualitative study.Asia-Pacific journal of oncology nursing · 2022Article
- Transition from Acute Treatment to Survivorship: Exploring the Psychosocial Adjustments of Chinese Parents of Children with Cancer or Hematological Disorders.International journal of environmental research and public health · 2021Article
- Are Researchers Addressing Cancer Treatment and Survivorship Among People With Intellectual and Developmental Disabilities in the U.S.? A Scoping Review.Intellectual and developmental disabilities · 2021Article
- Late Effects After Haematopoietic Stem Cell Transplantation in ALL, Long-Term Follow-Up and Transition: A Step Into Adult Life.Frontiers in pediatrics · 2021Review
- Influence of provider recommendations to restart vaccines after childhood cancer on caregiver intention to vaccinate.Journal of cancer survivorship : research and practice · 2020Article
- Facilitating Transitions to Adulthood in Pediatric Brain Tumor Patients: the Role of Neuropsychology.Current oncology reports · 2020Review
- Attitudes and experiences of childhood cancer survivors transitioning from pediatric care to adult care.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2018Article
- Identifying metrics of success for transitional care practices in childhood cancer survivorship: A qualitative study of survivorship providers.Pediatric blood & cancer · 2017Article
Corrections and comments
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Authors and funding
4 authors at 1 institution in 1 country.
Funding
Abstract
purposeMost adolescent and young adult (AYA)-aged childhood cancer survivors develop physical and/or psychosocial sequelae; however, many do not receive long-term follow-up (LTF) critical for screening, prevention, and treatment of late effects. To develop a health services research agenda to optimize care models, we conducted qualitative research with LTF providers examining existing models, and successes and challenges in maintaining survivors' connections to care across their transition to adulthood.
methodsWe interviewed 20 LTF experts (MDs, RNs, social workers, education specialists, psychologists) from 10 Children's Oncology Group-affiliated institutions, and analyzed data using grounded theory and content analysis techniques.
resultsParticipants described the complexity of survivors' healthcare transitions. Survivors had pressing educational needs in multiple domains, and imparting the need for prevention was challenging. Multidisciplinary LTF teams focused on prevention and self-management. Care and decisions about transfer were individualized based on survivors' health risks, developmental issues, and family contexts. An interplay of provider and institutional factors, some of which were potentially modifiable, also influenced how transitions were managed. Interviewees rarely collaborated with community primary care providers to comanage patients. Communication systems and collective norms about sharing care limited comanagement capacity. Interviewees described staffing practices, policies, and informal initiatives they found reduced attrition.
conclusionsResults suggest that survivors will benefit from care models that better connect patients, survivorship experts, and community providers for uninterrupted LTF across transitions. We propose research priorities, framing attrition from LTF as a public health concern, transition as the central challenge in LTF, and transition readiness as a multilevel concept.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.