SynthesisInternational journal of chronic obstructive pulmonary disease2016
Involvement of informal caregivers in supporting patients with COPD: a review of intervention studies.
Synthesis in International journal of chronic obstructive pulmonary disease, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT06046547 (Integrating Palliative Care Education in Pulmonary Rehabilitation), which is not on this map. Cited by 21 papers, 2 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Integrating Palliative Care Education in Pulmonary Rehabilitation
Who cites it
21 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Support and Its Effect for Persons Affected by COPD and Their Next of Kin - an Systematic Integrative Review.International journal of chronic obstructive pulmonary disease · 2025Pooled it
- Counseling for health behavior change in people with COPD: systematic review.International journal of chronic obstructive pulmonary disease · 2017Pooled it
- PRHOCARER study: protocol for a multicentre, convergent, mixed-methods trial assessing the effectiveness of pulmonary rehabilitation programmes and the needs of informal carers of people with chronic respiratory diseases.BMJ open respiratory research · 2026Article
- Recommendations Following Hospitalization for Acute Exacerbation of COPD-A Consensus Statement of the Polish Respiratory Society.Advances in respiratory medicine · 2026Article
- Patient-Caregiver Dyads in Severe and Advanced COPD: Relationships, Caregiving Burden, and Intervention Support: A Narrative Review.International journal of chronic obstructive pulmonary disease · 2026Review
- Integrating palliative care education in pulmonary rehabilitation: a randomized controlled study protocol.BMC palliative care · 2024Article
- Strategies implemented by informal caregivers to facilitate self-care in patients with chronic obstructive pulmonary disease (COPD): a scoping review protocol.Acta bio-medica : Atenei Parmensis · 2023Article
- Improving the wellbeing of caregivers of patients with COPD using a home-based pulmonary rehabilitation programme.ERJ open research · 2022Article
- Quality Standard Position Statements for Health System Policy Changes in Diagnosis and Management of COPD: A Global Perspective.Advances in therapy · 2022Article
- Developing a patient-driven chronic obstructive pulmonary disease (COPD) research agenda in the U.S.Journal of patient-reported outcomes · 2021Article
- Informal carers in Sweden - striving for partnership.International journal of qualitative studies on health and well-being · 2021Article
- Caregivers' experiences of contributing to patients' self-care in Chronic Obstructive Pulmonary Disease: A thematic synthesis of qualitative studies.Journal of advanced nursing · 2021Review
- An Agile Digital Platform to Support Population Health-A Case Study of a Digital Platform to Support Patients with Delirium Using IoT, NLP, and AI.International journal of environmental research and public health · 2021Article
- Sociodemographic and Clinical Variables Related to the Overburden of the Informal Caregivers of Patients Hospitalized for Chronic Obstructive Pulmonary Disease Exacerbations.International journal of chronic obstructive pulmonary disease · 2021Article
- How Many Older Informal Caregivers Are There in Europe? Comparison of Estimates of Their Prevalence from Three European Surveys.International journal of environmental research and public health · 2020Article
- Frustrated Caring: Family Members' Experience of Motivating COPD Patients Towards Self-Management.International journal of chronic obstructive pulmonary disease · 2020Article
- Article
- Assessing carer needs in chronic obstructive pulmonary disease.Chronic respiratory disease · 2018Review
- A cornerstone of healthy aging: do we need to rethink the concept of adherence in the elderly?Patient preference and adherence · 2018Article
- Article
Corrections and comments
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Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Caregivers of individuals with COPD have a key role in maintaining patient adherence and optimizing patient function. However, no systematic review has examined how the caregiver role has been operationalized in interventions to improve outcomes of individuals with COPD or the quality or effectiveness of these interventions. The aims of this review were to 1) determine whether caregivers have been involved as part of interventions to improve outcomes of individuals with COPD; 2) determine the risk of bias within included intervention studies; and 3) examine the effectiveness of interventions that have involved caregivers in improving outcomes of individuals with COPD. The electronic databases of Medline, Embase, PsycINFO, and Cochrane Library were searched from January 2000 to November 2015. Experimental studies testing interventions that involved a caregiver to improve COPD patient outcomes were eligible. Nine studies involving caregivers met inclusion criteria. No studies reported any intervention components targeted solely at caregivers, with most instead including caregivers in dyadic or group education sessions about COPD delivered by health care professionals. The risk of bias identified in included studies was mixed. Seven of the nine studies were effective in improving a broad range of outcomes. These findings highlight that there is an urgent need for methodologically rigorous interventions to examine the effectiveness of strategies to assist caregivers to provide direct care, encourage adherence to health care provider recommendations, act as a health care advocate, and provide emotional and psychosocial support to individuals with COPD.
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