ArticleJournal of genetic counseling2017
"I Don't Want to Be an Ostrich": Managing Mothers' Uncertainty during BRCA1/2 Genetic Counseling.
Article in Journal of genetic counseling, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers.
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Who cites it
20 citing papers in PubMed.
- Managing uncertainty in antibiotic decisions: factors influencing antibiotic use among chinese parents of children in a multi-source information environment.International journal of qualitative studies on health and well-being · 2026Article
- Transforming patient recruitment in clinical trials: Communication training to manage uncertainties about risks and benefits.Journal of clinical and translational science · 2026Article
- Addressing family communication in genetic counseling: A scoping review of process studies.Journal of genetic counseling · 2025Article
- Implementing a chatbot to promote hereditary breast & ovarian cancer genetic screening in women's health: identifying barriers and facilitators to screening adoption.BMC public health · 2025Article
- Need for specially designed educational support groups: Young women's experiences of being identified with BRCA pathogenic variants.Journal of genetic counseling · 2025Article
- Beyond BRCA: A scoping review of person-centred care for women diagnosed with a BRCA gene mutation.BMJ open · 2025Article
- Family communication of cancer genetic test results in an ethnically diverse population: a qualitative exploration of more than 200 patients.Journal of community genetics · 2024Article
- Understanding the role of parents' information sharing and withholding on emerging and young adults' caregiving and coping during their parents' advanced cancer.Journal of psychosocial oncology · 2024Article
- Understanding parents uncertainty sources and management strategies while caring for a child diagnosed with a hematologic cancer.PEC innovation · 2023Article
- Article
- Helping Diagnosed Mothers and Their Adolescent-Young Adult Daughters Navigate Challenging Breast Cancer Conversations.Cancer care research online · 2022Article
- "I wish that there was more info": characterizing the uncertainty experienced by carriers of pathogenic ATM and/or CHEK2 variants.Familial cancer · 2022Article
- "You Always Have It in the Back of Your Mind"-Feelings, Coping, and Support Needs of Women with Pathogenic Variants in Moderate-Risk Genes for Hereditary Breast Cancer Attending Genetic Counseling in Germany: A Qualitative Interview Study.International journal of environmental research and public health · 2022Article
- Coping with breast cancer together: Challenging topics for mothers and their adolescent-young adult (AYA) daughters.Journal of psychosocial oncology · 2022Article
- Theory utilization in current communication of cancer genetic testing research: Identified gaps and opportunities.Social science & medicine (1982) · 2021Article
- Blood cancer caregiving during COVID-19: understanding caregivers' needs.Translational behavioral medicine · 2021Article
- A scoping review of social and behavioral science research to translate genomic discoveries into population health impact.Translational behavioral medicine · 2021Article
- PGx in psychiatry: Patients' knowledge, interest, and uncertainty management preferences in the context of pharmacogenomic testing.Patient education and counseling · 2021Article
- Genetic testing and eHealth usage among Deaf women.Journal of genetic counseling · 2019Article
- Partnering With Mommy Bloggers to Disseminate Breast Cancer Risk Information: Social Media Intervention.Journal of medical Internet research · 2019Article
Corrections and comments
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Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Families who face genetic disease risk must learn how to grapple with complicated uncertainties about their health and future on a long-term basis. Women who undergo BRCA 1/2 genetic testing describe uncertainty related to personal risk as well as their loved ones', particularly daughters', risk. The genetic counseling setting is a prime opportunity for practitioners to help mothers manage uncertainty in the moment but also once they leave a session. Uncertainty Management Theory (UMT) helps to illuminate the various types of uncertainty women encounter and the important role of communication in uncertainty management. Informed by UMT, we conducted a thematic analysis of 16 genetic counseling sessions between practitioners and mothers at risk for, or carriers of, a BRCA1/2 mutation. Five themes emerged that represent communication strategies used to manage uncertainty: 1) addresses myths, misunderstandings, or misconceptions; 2) introduces uncertainty related to science; 3) encourages information seeking or sharing about family medical history; 4) reaffirms or validates previous behavior or decisions; and 5) minimizes the probability of personal risk or family members' risk. Findings illustrate the critical role of genetic counseling for families in managing emotionally challenging risk-related uncertainty. The analysis may prove beneficial to not only genetic counseling practice but generations of families at high risk for cancer who must learn strategic approaches to managing a complex web of uncertainty that can challenge them for a lifetime.
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