Evidence map›Paper›PMID 27469352›Full record

ArticleArchives of sexual behavior2017

"I Won't Out Myself Just to Do a Survey": Sexual and Gender Minority Adolescents' Perspectives on the Risks and Benefits of Sex Research.

Kathryn Macapagal, Ryan Coventry, Miriam R Arbeit, Celia B Fisher, Brian Mustanski

Abstract read
In one paragraph

Article in Archives of sexual behavior, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 76 papers, 3 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
76citing papers in PubMed, 3 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

76 citing papers in PubMed, 3 syntheses or guidelines pooled it.

  1. Pooled it
  2. Pooled it
  3. Pooled it
  4. Trial
  5. Minors' and Young Adults' Experiences of the Research Consent Process in a Phase II Safety Study of Pre-exposure Prophylaxis for HIV.The Journal of adolescent health : official publication of the Society for Adolescent Medicine · 2017
    Trial
  6. Article
  7. Article
  8. Article
  9. Parent-Adolescent Relationship Quality, Sexual Health Communication, and Willingness to Support Pre-Exposure Prophylaxis for HIV: A Qualitative Study.The Journal of adolescent health : official publication of the Society for Adolescent Medicine · 2026
    Article
  10. Reactions to Sexual, Substance Use, and Mental Health Surveys Among Rural Sexual Minority Men.Health education & behavior : the official publication of the Society for Public Health Education · 2025
    Article
  11. Article
  12. Article
  13. Article
  14. Article
  15. Are Adolescents Sensitive About Sensitive Data? Exploring Student Concerns About Privacy, Confidentiality, and Data Use in Health Research.The Journal of adolescent health : official publication of the Society for Adolescent Medicine · 2025
    Article
  16. Article
  17. Article
  18. Article
  19. Article
  20. Review

16 more citing papers are in PubMed but not listed here.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Kathryn MacapagalDepartment of Medical Social Sciences, Northwestern University Feinberg School of Medicine, 625 N. Michigan Avenue, Suite 2700, Chicago, IL, 60611, USA. kathryn.macapagal@northwestern.edu.
Ryan CoventryDepartment of Medical Social Sciences, Northwestern University Feinberg School of Medicine, 625 N. Michigan Avenue, Suite 2700, Chicago, IL, 60611, USA.
Miriam R ArbeitCenter for Ethics Education & Department of Psychology, Fordham University, Bronx, NY, USA.
Celia B FisherCenter for Ethics Education & Department of Psychology, Fordham University, Bronx, NY, USA.
Brian MustanskiDepartment of Medical Social Sciences, Northwestern University Feinberg School of Medicine, 625 N. Michigan Avenue, Suite 2700, Chicago, IL, 60611, USA.

Funding

Ethics in HIV Prevention Research Involving LGBT YouthR01MD009561 · NIMHD · NORTHWESTERN UNIVERSITY AT CHICAGO · PI FISHER, CELIA B, MUSTANSKI, BRIAN · 2014 to 2017
$2.0M
NIMHD NIH HHS R01 MD009561
6 · The paper itself

Abstract

Sexual and gender minority (SGM) adolescents under age 18 are underrepresented in sexual health research. Exclusion of SGM minors from these studies has resulted in a lack of knowledge about the risks and benefits youth experience from sexual health research participation. Institutional Review Boards' (IRB) overprotective stances toward research risks and requirements for guardian consent for SGM research are significant barriers to participation, though few have investigated SGM youth's perspectives on these topics. This study aimed to empirically inform decisions about guardian consent for sexuality survey studies involving SGM youth. A total of 74 SGM youth aged 14-17 completed an online survey of sexual behavior and SGM identity, and a new measure that compared the discomfort of sexual health survey completion to everyday events and exemplars of minimal risk research (e.g., behavioral observation). Youth described survey benefits and drawbacks and perspectives on guardian permission during an online focus group. Participants felt about the same as or more comfortable completing the survey compared to other research procedures, and indicated that direct and indirect participation benefits outweighed concerns about privacy and emotional discomfort. Most would not have participated if guardian permission was required, citing negative parental attitudes about adolescent sexuality and SGM issues and not being "out" about their SGM identity. Findings suggest that sexual health survey studies meet minimal risk criteria, are appropriate for SGM youth, and that recruitment would not be possible without waivers of guardian consent. Decreasing barriers to research participation would dramatically improve our understanding of sexual health among SGM youth.

Indexed as

Ethics, ResearchSurveys and QuestionnairesAdolescentFemaleFocus GroupsGender IdentityHumansMaleResearchResearch DesignSexual and Gender MinoritiesSexual BehaviorSexualityUnited StatesAdolescenceParental consentResearch ethicsSexual behaviorSexual orientation

Identifiers

PMID27469352
PMCPMC5274602

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.