Observational studyCanadian respiratory journal2016
The Canadian Registry for Pulmonary Fibrosis: Design and Rationale of a National Pulmonary Fibrosis Registry.
Observational study in Canadian respiratory journal, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT04946708 (Using Technology to Engage Patients With Interstitial Lung Disease), which is not on this map. Cited by 26 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Using Technology to Engage Patients With Interstitial Lung Disease (ILD) in a Home a Home Exercise Program.
Who cites it
26 citing papers in PubMed.
- Association of metformin with lung function decline and mortality in fibrotic interstitial lung disease: an observational cohort study.Respiratory research · 2026Observational
- Risk stratification as a guide to goal-oriented management of patients with fibrotic interstitial lung disease: a registry-based analysis.ERJ open research · 2026Article
- Impact of reference equations on lung function and outcomes in fibrotic interstitial lung disease.ERJ open research · 2025Article
- Performance Characteristics for Physiological Measures of Progressive Pulmonary Fibrosis.American journal of respiratory and critical care medicine · 2025Observational
- Association of vaccination status and immunosuppression with mortality of SARS-CoV-2 infection in patients with fibrotic interstitial lung disease.BMJ open respiratory research · 2025Article
- Lung imaging patterns in connective tissue disease-associated interstitial lung disease impact prognosis and immunosuppression response.Rheumatology (Oxford, England) · 2024Article
- Design and baseline characteristics of the ILD-PRO registry in patients with progressive pulmonary fibrosis.BMC pulmonary medicine · 2024Article
- Adaptive multi-interventional trial platform to improve patient care for fibrotic interstitial lung diseases.Thorax · 2024Article
- Characteristics of pulse oximetry and arterial blood gas in patients with fibrotic interstitial lung disease.BMJ open respiratory research · 2024Article
- Neighborhood Health and Outcomes in Idiopathic Pulmonary Fibrosis.Annals of the American Thoracic Society · 2024Article
- Predicting New-onset Exertional and Resting Hypoxemia in Fibrotic Interstitial Lung Disease.Annals of the American Thoracic Society · 2023Article
- Treatment of rheumatoid arthritis-associated interstitial lung disease in a multi-center registry cohort.Journal of thoracic disease · 2023Article
- Observational
- Circulating cytokine levels in systemic sclerosis related interstitial lung disease and idiopathic pulmonary fibrosis.Scientific reports · 2023Article
- Mapping EQ5D utilities from forced vital capacity and diffusing capacity in fibrotic interstitial lung disease.PloS one · 2023Article
- Patient Characteristics and Survival for Progressive Pulmonary Fibrosis Using Different Definitions.American journal of respiratory and critical care medicine · 2023Article
- Neighbourhood disadvantage impacts on pulmonary function in patients with sarcoidosis.ERJ open research · 2022Article
- Diagnosing interstitial lung disease by multidisciplinary discussion: A review.Frontiers in medicine · 2022Review
- Identification and Validation of Aging-Related Genes in Idiopathic Pulmonary Fibrosis.Frontiers in genetics · 2022Article
- Validation and minimum important difference of the UCSD Shortness of Breath Questionnaire in fibrotic interstitial lung disease.Respiratory research · 2021Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
19 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Background. The relative rarity and diversity of fibrotic interstitial lung disease (ILD) have made it challenging to study these diseases in single-centre cohorts. Here we describe formation of a multicentre Canadian registry that is needed to describe the outcomes of fibrotic ILD and to enable detailed healthcare utilization analyses that will be the cornerstone for future healthcare planning. Methods. The Canadian Registry for Pulmonary Fibrosis (CARE-PF) is a prospective cohort anticipated to consist of at least 2,800 patients with fibrotic ILD. CARE-PF will be used to (1) describe the natural history of fibrotic ILD, specifically determining the incidence and outcomes of acute exacerbations of ILD subtypes and (2) determine the impact of ILD and acute exacerbations of ILD on health services use and healthcare costs in the Canadian population. Consecutive patients with fibrotic ILD will be recruited from five Canadian ILD centres over a period of five years. Patients will be followed up as clinically indicated and will complete standardized questionnaires at each clinic visit. Prespecified outcomes and health services use will be measured based on self-report and linkage to provincial health administrative databases. Conclusion. CARE-PF will be among the largest prospective multicentre ILD registries in the world, providing detailed data on the natural history of fibrotic ILD and the healthcare resources used by these patients. As the largest and most comprehensive cohort of Canadian ILD patients, CARE-PF establishes a network for future clinical research and early phase clinical trials and provides a platform for translational and basic science research.
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