ArticlePatient education and counseling2016
Cross-cultural validation of the parent-patient activation measure in low income Spanish- and English-speaking parents.
Article in Patient education and counseling, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers.
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Who cites it
18 citing papers in PubMed.
- Measuring Activation in Parents of Youth with Emotional and Behavioral Disorders.The journal of behavioral health services & research · 2019Trial
- A multicenter randomized trial to improve family clinical note access and outcomes for hospitalized children: The Bedside Notes study protocol.Journal of hospital medicine · 2025Article
- A coadapted community-based participatory group programme for parents/carers of children with complex neurodisability (Encompass-2): a pilot and feasibility study protocol.Pilot and feasibility studies · 2025Article
- Validation of the Arabic Version of the Patient Activation Measure (PAM-13) for Application within the Primary Healthcare Context in Saudi Arabia.Healthcare (Basel, Switzerland) · 2023Article
- Parent Activation in the Neonatal Intensive Care Unit.American journal of perinatology · 2023Article
- Evaluating Patient and Family Experience Among Spanish-Speaking and LatinX Patients: a Scoping Review of Existing Instruments.Journal of racial and ethnic health disparities · 2023Article
- Shades of care: Understanding the needs of racially and ethnically diverse paediatric patients, their families, and health care providers in North America.Journal of child health care : for professionals working with children in the hospital and community · 2023Review
- Factor structure and internal consistency of the parent patient activation measure (P-PAM) in parents of children with ADHD in norwegian paediatric mental health.BMC psychiatry · 2023Article
- Racial/Ethnic Disparities in Parent Activation: Implications for Developing Interventions Addressing Early Childhood Obesity.Academic pediatrics · 2022Article
- Article
- Italian Consensus Statement on Patient Engagement in Chronic Care: Process and Outcomes.International journal of environmental research and public health · 2020Article
- Measuring patient activation in Chinese patients with hypertension and/or diabetes: reliability and validity of the PAM13.The Journal of international medical research · 2019Article
- Parent activation and pediatric primary care outcomes for vulnerable children: A mixed methods study.Patient education and counseling · 2019Article
- The Caregiving Health Engagement Scale (CHE-s): development and initial validation of a new questionnaire for measuring family caregiver engagement in healthcare.BMC public health · 2019Article
- Parental Activation and Obesity-Related Health Behaviors Among a Racially and Ethnically Diverse Population of Low-Income Pediatric Patients: Protocol for a Cross-Sectional Survey Study.JMIR research protocols · 2018Article
- Treatment efficacy of narrative family therapy for children and adolescents with diverse psychiatric symptomatology.Scandinavian journal of child and adolescent psychiatry and psychology · 2018Article
- Are Parent Activation and Health Literacy Distinct Concepts? A Study in Low Income Urban Populations.Journal of health disparities research and practice · 2018Article
- Electronic Patient-Reported Outcome Measure and Decision Support Tool Option for Early Intervention Service Quality: A Pilot Cluster-Randomized Pragmatic Trial.Advances in rehabilitation science and practiceArticle
Corrections and comments
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Authors and funding
7 authors.
Funding
Abstract
objective(1) To measure healthcare activation among low-income parents by language (English/Spanish); and (2) to assess the psychometrics of the Parent-Patient Activation Measure (P-PAM) in the study population.
methodsWe surveyed parents/guardians of publicly-insured children who were established patients at a pediatrics clinic for ≥6months. Surveys included the Parent-Patient Activation Measure (P-PAM), a 13-item measure adapted from the well-validated Patient Activation Measure (PAM).
resultsOf 316 surveys, 68% were completed in Spanish. Mean activation score in the English-language survey group was 79.1 (SD 16.2); mean score in the Spanish-language group was 70.7 (SD 17.9) (p<0.001). Scale reliability was high (English α=0.90; Spanish α=0.93). The P-PAM had acceptable test-retest reliability, but no previously reported PAM factor structure fit the study data adequately for either language.
conclusionsHealthcare activation among low-income parents was greater for parents surveyed in English compared with those surveyed in Spanish. The P-PAM has acceptable reliability and validity in English and Spanish, but a different factor structure than the PAM. PRACTICE IMPLICATIONS: Activation as measured by the P-PAM may not have the same associations with or impact on health/healthcare outcomes in pediatrics compared with adults owing to possible measure differences between the P-PAM and PAM.
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