Evidence map›Paper›PMID 27443274›Full record

ArticleJournal of the International AIDS Society2016

Opportunities and challenges in conducting secondary analysis of HIV programmes using data from routine health information systems and personal health information.

Stephen Gloyd, Bradley H Wagenaar, Godfrey B Woelk, Samuel Kalibala

Open access · goldAbstract read
In one paragraph

Article in Journal of the International AIDS Society, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 22 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
22citing papers in PubMed, 2 pooled it
2.6field-weighted citation impact, top 10% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

22 citing papers in PubMed, 2 syntheses or guidelines pooled it, 41 citations in OpenAlex.

  1. Digital Health Data Quality Issues: Systematic Review.Journal of medical Internet research · 2023
    Pooled it
  2. Pooled it
  3. Regulatory framework for health information systems in Ethiopia: A qualitative document analysis.Health information management : journal of the Health Information Management Association of Australia · 2026
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors at 3 institutions in 1 country.

Stephen GloydDepartment of Global Health, University of Washington, Seattle, WA, USA.
Bradley H WagenaarDepartment of Global Health, University of Washington, Seattle, WA, USA.
Godfrey B WoelkElizabeth Glaser Pediatric AIDS Foundation, Washington, DC, USA.
Samuel KalibalaHIVCore/Population Council, Washington, DC, USA.
University of Washington · USElizabeth Glaser Pediatric AIDS Foundation · USPopulation Council · US

Funding

University of Washington/Fred Hutch Center for AIDS ResearchP30AI027757 · NIAID · UNIVERSITY OF WASHINGTON · PI Kenneth Sherr · 1988 to 2026
$104.9M
NIAID NIH HHS P30 AI027757PEPFAR
6 · The paper itself

Abstract

introductionHIV programme data from routine health information systems (RHIS) and personal health information (PHI) provide ample opportunities for secondary data analysis. However, these data pose unique opportunities and challenges for use in health system monitoring, along with process and impact evaluations.

methodsAnalyses focused on retrospective case reviews of four of the HIV-related studies published in this JIAS supplement. We identify specific opportunities and challenges with respect to the secondary analysis of RHIS and PHI data.

resultsChallenges working with both HIV-related RHIS and PHI included missing, inconsistent and implausible data; rapidly changing indicators; systematic differences in the utilization of services; and patient linkages over time and different data sources. Specific challenges among RHIS data included numerous registries and indicators, inconsistent data entry, gaps in data transmission, duplicate registry of information, numerator-denominator incompatibility and infrequent use of data for decision-making. Challenges specific to PHI included the time burden for busy providers, the culture of lax charting, overflowing archives for paper charts and infrequent chart review.

conclusionsMany of the challenges that undermine effective use of RHIS and PHI data for analyses are related to the processes and context of collecting the data, excessive data requirements, lack of knowledge of the purpose of data and the limited use of data among those generating the data. Recommendations include simplifying data sources, analysis and reporting; conducting systematic data quality audits; enhancing the use of data for decision-making; promoting routine chart review linked with simple patient tracking systems; and encouraging open access to RHIS and PHI data for increased use.

Indexed as

Data CollectionHealth Information SystemsHIV InfectionsInformation Storage and RetrievalHealth Records, PersonalHumansProgram EvaluationRetrospective Studiesdata accuracydata analysiselectronic medical recordshealth information systemsmissing datapersonal health informationsecondary data analysis

Identifiers

PMID27443274
PMCPMC4956739
OpenAlexW2476695450

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.