ArticlePediatric blood & cancer2016
The impact of language barriers and immigration status on the care experience for Spanish-speaking caregivers of patients with pediatric cancer.
Article in Pediatric blood & cancer, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 30 papers, 1 of them a synthesis that pooled it.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
30 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Differences in Cancer Patient Experience by Race, Ethnicity, and Preferred Language: A Systematic Review.Cancer medicine · 2026Pooled it
- Colorectal Cancer Screening Communication and Completion Among Black and Hispanic Primary Care Patients.Research square · 2026Article
- Communication Barriers in Patient-Provider Interactions in Health Care: Scoping Review.Journal of medical Internet research · 2026Article
- Codesigning an Online Psychotherapeutic Intervention for Carers of People With Cancer-A Qualitative Study of Carer Needs and Perspectives on Psychological Support.Psycho-oncology · 2026Article
- Screening of Pediatric Patients at Cardiology Clinic Identifies High Prevalence of Food Insecurity.International journal of environmental research and public health · 2026Article
- A Culturally Congruent Psychosocial Intervention for Latino Caregivers of Children with Cancer: Intervention Development.Children (Basel, Switzerland) · 2026Article
- Cancer care disparities among patients with limited English proficiency: challenges and strategies for equity.BJC reports · 2025Review
- Adolescent and Parent Perceptions of the American College of Surgeons Safe and Effective Pain Control Brochure.Journal of pediatric surgery · 2025Article
- Non-English Language Preference and Breast Cancer Outcomes.JAMA network open · 2025Article
- Disparities in Clinical Trial Participation in Children and Adolescent Patients With a Hematologic Malignancy.Pediatric blood & cancer · 2025Article
- Sociodemographic and Socioeconomic Factors Correlate with Late-Stage Pediatric Hodgkin Lymphoma and Rhabdomyosarcoma: A Report from the Children's Oncology Group Registries.Cancer epidemiology, biomarkers & prevention : a publication of the American Association for Cancer Research, cosponsored by the American Society of Preventive Oncology · 2024Article
- Linguistic isolation correlates with length of stay and mortality for pediatric oncology patients in California.Cancer medicine · 2024Article
- Initial Psychometric Testing of a Pain Quality Pictogram Tool Among Hmong Limited English Proficient and Bilingual Community Members and Healthcare Practitioners.Pain management nursing : official journal of the American Society of Pain Management Nurses · 2024Article
- Immigrant assimilation in health care utilisation in Spain.The European journal of health economics : HEPAC : health economics in prevention and care · 2024Article
- The impact of COVID-19 on racial and ethnic disparities in presentation with perforated appendicitis in children: A retrospective cohort study.Surgery open science · 2024Article
- The International Transfer of Patients With Positive SARS-CoV-2 Test Using a Framework.Cureus · 2023Article
- A Case Study of the Impact of Language Concordance on Patient Care, Satisfaction, and Comfort with Sharing Sensitive Information During Medical Care.Journal of immigrant and minority health · 2023Article
- Evaluating Patient and Family Experience Among Spanish-Speaking and LatinX Patients: a Scoping Review of Existing Instruments.Journal of racial and ethnic health disparities · 2023Article
- The Experience of Informal Newcomer Cancer Caregivers with Limited Language Proficiency: A Scoping Review.Journal of immigrant and minority health · 2023Article
- Patient Satisfaction With Breast Cancer Care Delivery at the National Cancer Institute of Sri Lanka: Does Language Play a Role?JCO global oncology · 2023Article
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Authors and funding
9 authors.
Funding
Abstract
backgroundAn increasing proportion of pediatric cancer patients in the United States are Latino and many have Spanish-speaking immigrant parents with limited English proficiency (LEP). Little is known about how language or undocumented immigration status impacts their care experience. PROCEDURE: A cross-sectional survey was administered to English (N = 310) and Spanish-speaking LEP (N = 56) caregivers of pediatric cancer patients. To assess differences in healthcare experiences between the language groups, t-tests and chi-square statistics were used. Multivariable logistic regression evaluated associations between primary language and knowledge of clinical trial status.
resultsSpanish-speaking caregivers were more likely to report higher rates of quitting or changing jobs as a direct result of their child's cancer, and their children were more likely to experience a delay in education. Although Spanish-speaking caregivers reported higher satisfaction with care, 32% reported feeling that their child would have received better care if English was their primary language. Spanish-speaking caregivers were more likely to incorrectly identify whether their child was on a clinical trial compared with English-speaking caregivers. The majority of Spanish-speaking caregivers reported at least one undocumented caregiver in the household and 11% of them avoided or delayed medical care for their child due to concerns over their undocumented immigration status.
conclusionsLanguage barriers and undocumented immigration status may negatively impact the quality of informed decision-making and the care experience for Spanish-speaking LEP caregivers of pediatric cancer patients. These families may benefit from culturally appropriate Spanish language resources to improve communication and open a dialogue regarding undocumented immigration status.
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