Evidence map›Paper›PMID 27423182›Full record

ArticleBMC health services research2016

Do informal caregivers for elderly in the community use support measures? A qualitative study in five European countries.

Evi Willemse, Sibyl Anthierens, Maria Isabel Farfan-Portet, Olivier Schmitz, Jean Macq, Hilde Bastiaens, Tinne Dilles, Roy Remmen

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Article in BMC health services research, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 23 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
23citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

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Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

23 citing papers in PubMed, 1 synthesis or guideline pooled it.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Evi WillemseUniversity of Antwerp, Antwerp, Belgium. evi.willemse@thomasmore.be.
Sibyl AnthierensUniversity of Antwerp, Antwerp, Belgium.
Maria Isabel Farfan-PortetBelgian Health Care Knowledge Centre (KCE), Bruxelles, Belgium.
Olivier SchmitzUniversité Catholique De Louvain, Louvain, Belgium.
Jean MacqUniversité Catholique De Louvain, Louvain, Belgium.
Hilde BastiaensUniversity of Antwerp, Antwerp, Belgium.
Tinne DillesUniversity of Antwerp, Antwerp, Belgium.
Roy RemmenUniversity of Antwerp, Antwerp, Belgium.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundInformal caregivers are essential figures for maintaining frail elderly at home. Providing informal care can affect the informal caregivers' physical and psychological health and labour market participation capabilities. They need support to prevent caregiver burden. A variety of existing support measures can help the caregiver care for the elderly at home, but with some limitations. The objective of this review was to explore the experiences of informal caregivers caring for elderly in the community with the use of supportive policy measures in Belgium and compare these to the experiences in other European countries.

methodsAn empirical qualitative case study research was conducted in five European countries (Belgium, The Netherlands, Luxembourg, France and Germany). Semi-structured interviews were conducted with informal caregivers and their dependent elderly. Interview data from the different cases were analysed. In particular data from Belgium was compared to data from the cases abroad.

resultsFormal services (e.g. home care) were reported to have the largest impact on allowing the caregiver to care for the dependent elderly at home. One of the key issues in Belgium is the lack of timely access to reliable information about formal and informal services in order to proactively support the informal caregiver. Compared to the other countries, informal caregivers in Belgium expressed more difficulties in accessing support measures and navigating through the health system. In the other countries information seemed to be given more timely when home care was provided via care packages.

conclusionTo support the informal caregiver, who is the key person to support the frail elderly, fragmentation of information regarding supportive policy measures is an important issue of concern.

Indexed as

Adaptation, PsychologicalFrail ElderlyHome Care ServicesPatient CarePsychosocial Support SystemsAgedAged, 80 and overCaregiversContinuity of Patient CareEuropeFemaleHumansInterviews as TopicMaleMental HealthMiddle AgedContinuity of care(Family) caregiversLong term carePrimary careSupport

Identifiers

PMID27423182
PMCPMC4947246

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.