ArticleJournal of the American Medical Informatics Association : JAMIA2017
Online cancer communities as informatics intervention for social support: conceptualization, characterization, and impact.
Article in Journal of the American Medical Informatics Association : JAMIA, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 46 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
46 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Uncovering the hierarchical determinants of continuous usage in online health communities: integrating meta-analysis with FUZZY-DEMATEL-AISM.Scientific reports · 2026Pooled it
- Design Guidelines for Online Health Forums: User-Centered Design Approach.Journal of medical Internet research · 2026Article
- Emotion Expression in Breast Cancer Support Seeking: Empirical Study of an Online Community.JMIR medical informatics · 2026Article
- Trauma narratives and healing of offspring caregivers of breast cancer patients: a mixed qualitative methods study.BMC psychology · 2025Article
- Analysis of Breast Cancer Information on Facebook Using Neural Network-Based Topic Modeling and Metadata Analysis of English and Spanish Content: Comparative Study.Journal of medical Internet research · 2025Article
- Harnessing Social Media Data to Understand Information Needs About Kidney Diseases and Emotional Experiences With Disease Management: Topic and Sentiment Analysis.Journal of medical Internet research · 2025Article
- "Crying in the Wilderness"-The Use of Web-Based Support in Telomere Biology Disorders: Thematic Analysis.JMIR formative research · 2024Article
- Effectiveness of Artificial Intelligence Technologies in Cancer Treatment for Older Adults: A Systematic Review.Journal of clinical medicine · 2024Review
- A QUANTITATIVE LINGUISTIC ANALYSIS OF A CANCER ONLINE HEALTH COMMUNITY WITH A SMOOTH LATENT SPACE MODEL.The annals of applied statistics · 2024Article
- Use of Immersive Virtual Reality Spaces to Engage Adolescent and Young Adult Patients With Cancer in Therapist-Guided Support Groups: Protocol for a Pre-Post Study.JMIR research protocols · 2023Article
- Growth curve modeling of virtual events and online engagement in a palliative care peer support online health community for adolescents and young adults.Journal of the American Medical Informatics Association : JAMIA · 2023Article
- How does social media use influence the mental health of pancreatic cancer patients: a chain mediating effect of online social support and psychological resilience.Frontiers in public health · 2023Article
- "It made me feel like I wasn't alone in the darkness": exploring dementia care network communication and coordination through a digital health platform.Journal of the American Medical Informatics Association : JAMIA · 2022Article
- Efficacy of an Integrated Mobile Application System for Patients with Radiation Therapy: A Pilot Study.Healthcare (Basel, Switzerland) · 2022Article
- Personality, Attitudes, and Behaviors Predicting Perceived Benefit in Online Support Groups for Caregivers: Mixed Methods Study.JMIR nursing · 2022Article
- Intraindividual, Dyadic, and Network Communication in a Digital Health Intervention: Distinguishing Message Exposure from Message Production.Health communication · 2022Article
- Do Informational and Emotional Elements Differ between Online Psychological and Physiological Disease Communities in China? A Comparative Study of Depression and Diabetes.International journal of environmental research and public health · 2022Article
- Re-evaluating standards of human subjects protection for sensitive health data in social media networks.Social networks · 2021Article
- Evaluating Mental Health-Related Symptoms Among Cancer Survivors During the COVID-19 Pandemic: An Analysis of the COVID Impact Survey.JCO oncology practice · 2021Article
- Motivation Research on the Content Creation Behaviour of Young Adults in Anxiety Disorder Online Communities.International journal of environmental research and public health · 2021Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors.
Funding
Abstract
Objectives: The Internet and social media are revolutionizing how social support is exchanged and perceived, making online health communities (OHCs) one of the most exciting research areas in health informatics. This paper aims to provide a framework for organizing research of OHCs and help identify questions to explore for future informatics research. Based on the framework, we conceptualize OHCs from a social support standpoint and identify variables of interest in characterizing community members. For the sake of this tutorial, we focus our review on online cancer communities. Target audience: The primary target audience is informaticists interested in understanding ways to characterize OHCs, their members, and the impact of participation, and in creating tools to facilitate outcome research of OHCs. OHC designers and moderators are also among the target audience for this tutorial. Scope: The tutorial provides an informatics point of view of online cancer communities, with social support as their leading element. We conceptualize OHCs according to 3 major variables: type of support, source of support, and setting in which the support is exchanged. We summarize current research and synthesize the findings for 2 primary research questions on online cancer communities: (1) the impact of using online social support on an individual's health, and (2) the characteristics of the community, its members, and their interactions. We discuss ways in which future research in informatics in social support and OHCs can ultimately benefit patients.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.