ArticleJournal of the American Medical Informatics Association : JAMIA2017
Online patient websites for electronic health record access among vulnerable populations: portals to nowhere?
Article in Journal of the American Medical Informatics Association : JAMIA, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT06598436 (Achieving Chronic Care equiTy by leVeraging the Telehealth Ecosystem), which is not on this map. Cited by 86 papers, 6 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Achieving Chronic Care equiTy by leVeraging the Telehealth Ecosystem
Who cites it
86 citing papers in PubMed, 6 syntheses or guidelines pooled it, 218 citations in OpenAlex.
- The impact of different radiology report formats on patient information processing: a systematic review.European radiology · 2025Pooled it
- Using an Integrated Framework to Investigate the Facilitators and Barriers of Health Information Technology Implementation in Noncommunicable Disease Management: Systematic Review.Journal of medical Internet research · 2022Pooled it
- Barriers to patient, provider, and caregiver adoption and use of electronic personal health records in chronic care: a systematic review.BMC medical informatics and decision making · 2020Pooled it
- Using Electronic Health Record Portals to Improve Patient Engagement: Research Priorities and Best Practices.Annals of internal medicine · 2020Pooled it
- Interventions to increase patient portal use in vulnerable populations: a systematic review.Journal of the American Medical Informatics Association : JAMIA · 2019Pooled it
- Barriers, Facilitators, and Solutions to Optimal Patient Portal and Personal Health Record Use: A Systematic Review of the Literature.AMIA ... Annual Symposium proceedings. AMIA Symposium · 2017Pooled it
- Examining the Relationship between Health Literacy, Health Numeracy, and Patient Portal Use.Applied clinical informatics · 2022Trial
- Home visits for uncontrolled asthma among low-income adults with patient portal access.The Journal of allergy and clinical immunology · 2019Trial
- Communicating with Vulnerable Patient Populations: A Randomized Intervention to Teach Inpatients to Use the Electronic Patient Portal.Applied clinical informatics · 2018Trial
- A Randomized Trial to Train Vulnerable Primary Care Patients to Use a Patient Portal.Journal of the American Board of Family Medicine : JABFMTrial
- Digital Health Technology Use by Vietnamese Americans: Cross-Sectional Study.Asian/Pacific Island nursing journal · 2026Article
- Confronting complexity: toward equitable healthcare technology design and evaluation for socioeconomically marginalized patients.JAMIA open · 2026Article
- Identifying trajectories across care modalities before and after COVID-19 using sequence analysis.NPJ digital medicine · 2026Article
- Feasibility and Acceptability of a Prevention-Focused Screener for Perinatal Depression Risk: Mixed Methods Cohort Study.JMIR human factors · 2026Article
- Identifying Skill and Usability Barriers to Digital Health Tool Use Among Older Adult Patients in US Safety Net Clinics: Mixed Methods Study.JMIR human factors · 2026Article
- Homeless-experienced patients' perspectives on improving patient portal Use.Frontiers in digital health · 2026Article
- Trajectories of In-Person and Remote Care Utilization: A Sequence Analysis of Primary Care Modalities Pre- and Post-COVID-19.Research square · 2025Article
- A self-report measure of digital skills needed to use digital health tools among older adults-the Skills Measurement and Readiness Training for Digital Health (SMART Digital Health) Scale.Journal of the American Medical Informatics Association : JAMIA · 2025Article
- Development and Feasibility of a Novel mHealth Resource for Food Insecurity: Mixed Methods Cohort Study.Journal of medical Internet research · 2025Article
- Experiences and Expectations of Immigrant and Nonimmigrant Older Adults Regarding eHealth Services: Qualitative Interview Study.Journal of medical Internet research · 2025Article
26 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
8 authors at 4 institutions in 1 country.
Funding
Abstract
objectiveWith the rapid rise in the adoption of patient portals, many patients are gaining access to their personal health information online for the first time. The objective of this study was to examine specific usability barriers to patient portal engagement among a diverse group of patients and caregivers. MATERIALS AND
methodsWe conducted interviews using performance testing and think-aloud methods with 23 patients and 2 caregivers as they first attempted to use features of a newly launched patient portal.
resultsIn navigating the portal, participants experienced basic computer barriers (eg, difficulty using a mouse), routine computer barriers (eg, mistyping, navigation issues), reading/writing barriers, and medical content barriers. Compared to participants with adequate health literacy, participants with limited health literacy required 2 additional minutes to complete each task and were more likely to experience each type of navigational barrier. They also experienced more inaccuracies in interpreting a test result and finding a treatment plan within an after-visit summary. DISCUSSION: When using a patient portal for the first time, participants with limited health literacy completed fewer tasks unassisted, had a higher prevalence of encountering barriers, took longer to complete tasks, and had more problems accurately interpreting medical information.
conclusionOur findings suggest a strong need for tailored and accessible training and support to assist all vulnerable patients and/or caregivers with portal registration and use. Measuring the health literacy of a patient population might serve as a strong proxy for identifying patients who need the most support in using health technologies.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.