Evidence map›Paper›PMID 27396747›Full record

ArticleInternational journal of circumpolar health2016

Ethical and methodological issues in research with Sami experiencing disability.

Line Melbøe, Ketil Lenert Hansen, Bjørn-Eirik Johnsen, Gunn Elin Fedreheim, Tone Dinesen, Gunn-Tove Minde, Marit Rustad

Open access · goldAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in International journal of circumpolar health, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
1.2field-weighted citation impact, top 19% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed, 11 citations in OpenAlex.

  1. Article
  2. Article
  3. Mental health among Sami people with intellectual disabilities.International journal of circumpolar health · 2019
    Article
  4. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors at 1 institution in 1 country.

Line MelbøeDepartment of Social Education, University of Tromsø - The Arctic University of Norway, Harstad, Norway; line.melboe@uit.no.
Ketil Lenert HansenDepartment of Social Education, University of Tromsø - The Arctic University of Norway, Harstad, Norway.
Bjørn-Eirik JohnsenDepartment of Social Education, University of Tromsø - The Arctic University of Norway, Harstad, Norway.
Gunn Elin FedreheimDepartment of Social Education, University of Tromsø - The Arctic University of Norway, Harstad, Norway.
Tone DinesenDepartment of Social Education, University of Tromsø - The Arctic University of Norway, Harstad, Norway.
Gunn-Tove MindeDepartment of Social Education, University of Tromsø - The Arctic University of Norway, Harstad, Norway.
Marit RustadDepartment of Social Education, University of Tromsø - The Arctic University of Norway, Harstad, Norway.
UiT The Arctic University of Norway · NO

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundA study of disability among the indigenous Sami people in Norway presented a number of ethical and methodological challenges rarely addressed in the literature.

objectivesThe main study was designed to examine and understand the everyday life, transitions between life stages and democratic participation of Norwegian Sami people experiencing disability. Hence, the purpose of this article is to increase the understanding of possible ethical and methodological issues in research within this field. The article describes and discusses ethical and methodological issues that arose when conducting our study and identifies some strategies for addressing issues like these.

methodsThe ethical and methodological issues addressed in the article are based on a qualitative study among indigenous Norwegian Sami people experiencing disability. The data in this study were collected through 31 semi-structured in-depth interviews with altogether 24 Sami people experiencing disability and 13 next of kin of Sami people experiencing disability (8 mothers, 2 fathers, 2 sister and 1 guardian). FINDINGS AND DISCUSSION: The researchers identified 4 main areas of ethical and methodological issues. We present these issues chronologically as they emerged in the research process: 1) concept of knowledge when designing the study, 2) gaining access, 3) data collection and 4) analysis and accountability.

conclusionThe knowledge generated from this study has the potential to benefit future health research, specifically of Norwegian Sami people experiencing disability, as well as health research concerning indigenous people in general, providing scientific-based insight into important ethical and methodological issues in research with indigenous people experiencing disability.

Indexed as

Cultural CharacteristicsPersons with DisabilitiesAdultArctic RegionsAttitude to HealthCaregiversFamily RelationsFemaleHumansMaleMiddle AgedMoralsNorwayPopulation GroupsSocial Valuesdisabilityethical and methodological issueshealthindigenousNorwaySami

Identifiers

PMID27396747
PMCPMC4938889
OpenAlexW2461403763

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.