ArticleJournal of community genetics2016
Carrier screening for beta-thalassemia in the Maldives: perceptions of parents of affected children who did not take part in screening and its consequences.
Article in Journal of community genetics, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.
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Who cites it
5 citing papers in PubMed.
- Thalassaemia prevention in Asia: progress, challenges, and future directions.The Lancet regional health. Southeast Asia · 2026Review
- Pulse of Generosity: A Qualitative Insight Into the Knowledge, Attitudes, and Motivations of Voluntary Blood Donors at a Tertiary Care Hospital, Maldives.BioMed research international · 2026Article
- Islamic perspectives on preconception, prenatal, and perinatal counseling.Frontiers in pediatrics · 2024Review
- A Child Lost to Follow Up Carrying Beta Thalassemia Major: A Case Report.JNMA; journal of the Nepal Medical Association · 2020Article
- Management of the first severe case of COVID-19 in the small islands of Maldives.Respiratory medicine case reports · 2020Article
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Authors and funding
4 authors.
Funding
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Abstract
The Republic of Maldives (Maldives) is an island nation in the Indian Ocean with a population of 344, 023. Studies show that Maldives has one of the world's highest thalassemia carrier rates. It is estimated that 16-18 % of the Maldivians are β-thalassemia carriers, and approximately 28 new β-thal cases are recorded annually. Poor uptake of screening for the condition is one of the main reasons for this high number of new cases. The aim of this study was to explore the reasons for not testing for thalassemia in Maldives before or after marriage. Findings show that participants did not undergo carrier tests because of poor awareness and not fully knowing the devastating consequences of the condition. The outcomes of not testing were distressing for most participants. Religion played a vital role in all the decisions made by the participants before and after the birth of a β-thal child.
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