ArticleJMIR research protocols2016
Telemedicine in Neonatal Home Care: Identifying Parental Needs Through Participatory Design.
Article in JMIR research protocols, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers.
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Who cites it
16 citing papers in PubMed, 27 citations in OpenAlex.
- Effectiveness of the PRECEDE-PROCEED model for improving the care knowledge, skill, and sense of competence in mothers of preterm infants.The Journal of international medical research · 2022Trial
- Trial
- Article
- Telemedicine in pediatrics: a critical narrative review of innovations, limitations, and future priorities.European journal of pediatrics · 2026Review
- Discharge criteria, practices, and decision-making in the transition of preterm infants to home.Pediatric research · 2026Article
- Digital maternity care in Germany: a cross-sectional web-based survey on midwives' perceptions.Archives of gynecology and obstetrics · 2026Article
- Co-developing an intervention to facilitate safe and early transition to neonatal home care for very preterm infants: a mixed-method study evaluating the impact of patient and public involvement.Research involvement and engagement · 2025Article
- An Individualized Postoperative Pain Risk Communication Tool for Use in Pediatric Surgery: Co-Design and Usability Evaluation.JMIR pediatrics and parenting · 2023Article
- Patient engagement practice within perinatal eHealth: A scoping review.Nursing open · 2023Article
- Digital solutions to follow up on discharged new parents-A systematic literature review.PLOS digital health · 2023Article
- Using Digital Communication Technology to Improve Neonatal Care: Two-Part Explorative Needs Assessment.JMIR pediatrics and parenting · 2023Article
- Virtual clinic in pregnancy and postpartum healthcare: A systematic review.Health science reports · 2023Article
- Telemedicine across the continuum of neonatal-perinatal care.Seminars in fetal & neonatal medicine · 2022Review
- Bridging the gap: A user-driven study on new ways to support self-care and empowerment for patients with hip fracture.SAGE open medicine · 2018Article
- Participatory design methods for the development of a clinical telehealth service for neonatal homecare.SAGE open medicine · 2017Article
- The Neonatal Mortality and Hospitalization Rate among High-Risk Neonates who Underwent Home Care Services.Iranian journal of nursing and midwifery researchArticle
Corrections and comments
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Authors and funding
4 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundFor the majority of preterm infants, the last weeks of hospital admission mainly concerns tube feeding and establishment of breastfeeding. Neonatal home care (NH) was developed to allow infants to remain at home for tube feeding and establishment of breastfeeding with regular home visits from neonatal nurses. For hospitals covering large regions, home visits may be challenging, time consuming, and expensive and alternative approaches must be explored.
objectiveTo identify parental needs when wanting to provide neonatal home care supported by telemedicine.
methodsThe study used participatory design and qualitative methods. Data were collected from observational studies, individual interviews, and focus group interviews. Two neonatal units participated. One unit was experienced in providing neonatal home care with home visits, and the other planned to offer neonatal home care with telemedicine support. A total of 9 parents with preterm infants assigned to a neonatal home care program and 10 parents with preterm infants admitted to a neonatal unit participated in individual interviews and focus group interviews, respectively.
resultsThree overall themes were identified: being a family, parent self-efficacy, and nurse-provided security. Parents expressed desire for the following: (1) a telemedicine device to serve as a "bell cord" to the neonatal unit, giving 24-hour access to nurses, (2) video-conferencing to provide security at home, (3) timely written email communication with the neonatal unit, and (4) an online knowledge base on preterm infant care, breastfeeding, and nutrition.
conclusionsOur findings highlight the importance of neonatal home care. NH provides parents with a feeling of being a family, supports their self-efficacy, and gives them a feeling of security when combined with nursing guidance. Parents did not request hands-on support for infant care, but instead expressed a need for communication and guidance, which could be met using telemedicine.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.