Evidence map›Paper›PMID 27389613›Full record

ArticleHealth expectations : an international journal of public participation in health care and health policy2017

The development of service user-led recommendations for health and social care services on leaving hospital with memory loss or dementia - the SHARED study.

Carole Mockford, Kate Seers, Matt Murray, Jan Oyebode, Rosemary Clarke, Sophie Staniszewska, Rashida Suleman, Sue Boex, Yvonne Diment, Richard Grant and 2 more

Open access · goldAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Health expectations : an international journal of public participation in health care and health policy, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed, 2 pooled it
3.8field-weighted citation impact, top 7% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

7 citing papers in PubMed, 2 syntheses or guidelines pooled it, 14 citations in OpenAlex.

  1. Pooled it
  2. Pooled it
  3. Trial
  4. Article
  5. Article
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  7. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors at 5 institutions in 2 countries.

Carole MockfordDivision of Health Sciences, Warwick Medical School, University of Warwick, Coventry, UK.
Kate SeersDivision of Health Sciences, Warwick Medical School, University of Warwick, Coventry, UK.
Matt MurrayAlzheimer's Society, London, UK.
Jan OyebodeSchool of Dementia Studies, University of Bradford, Bradford, UK.
Rosemary ClarkeUniversity/Users Teaching and Research Action Partnership (UNTRAP), University of Warwick, Coventry, UK.
Sophie StaniszewskaDivision of Health Sciences, Warwick Medical School, University of Warwick, Coventry, UK.
Rashida SulemanUniversity/Users Teaching and Research Action Partnership (UNTRAP), University of Warwick, Coventry, UK.
Sue BoexAlzheimer's Society Research Network, London, UK.
Yvonne DimentAlzheimer's Society Research Network, London, UK.
Richard GrantUniversity/Users Teaching and Research Action Partnership (UNTRAP), University of Warwick, Coventry, UK.
Jim LeachPatient and Public Action Group, Clinical Research Network, Coventry, UK.
Uma SharmaUniversity/Users Teaching and Research Action Partnership (UNTRAP), University of Warwick, Coventry, UK.
University of Warwick · GBAlzheimer's Society · GBAction Network · USNational Institute for Health Research · GBUniversity of Bradford · GB

Funding

Department of Health PB-PG-1112-29064Department of Health WMCLAHRC-2014-1
6 · The paper itself

Abstract

backgroundHealth and social care services are under strain providing care in the community particularly at hospital discharge. Patient and carer experiences can inform and shape services.

objectiveTo develop service user-led recommendations enabling smooth transition for people living with memory loss from acute hospital to community.

designLead and co-researchers conducted semi-structured interviews with 15 pairs of carers and patients with memory loss at discharge, 6 and 12 weeks post-discharge and one semi-structured interview with health and social care professionals and Admiral Nurses. Framework analysis was guided by co-researchers. Two focus groups of study participants, facilitated by co-researchers, met to shape and finalize recommendations. SETTING AND

participantsRecruitment took place in acute hospitals in two National Health Service (NHS) Trusts in England. Patients were aged 65 and over, with memory loss, an in-patient for at least 1 week returning to the community, who had a carer consenting to be in the study.

resultsPoor delivery of services caused considerable stress to some study families living with memory loss. Three key recommendations included a need for a written, mutually agreed discharge plan, a named coordinator of services, and improved domiciliary care services. DISCUSSION AND

conclusionsVulnerable patients with memory loss find coming out of hospital after an extended period a stressful experience. The SHARED study contributes to understanding the hospital discharge process through the eyes of the patient and carer living with memory loss and has the potential to contribute to more efficient use of resources and to improving health outcomes in communities.

Indexed as

Social WorkAgedCaregiversContinuity of Patient CareDementiaEnglandFemaleFocus GroupsHospitalsHumansMaleMemory DisordersPatient DischargeStress, Psychologicaldementiahospital dischargelay co-researchersmemory lossservice provisionservice user-led recommendations

Identifiers

PMID27389613
PMCPMC5433530
OpenAlexW2465959685

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.