Evidence map›Paper›PMID 27387756›Full record

ArticleBMC geriatrics2016

Development of guidelines for family and non-professional helpers on assisting an older person who is developing cognitive impairment or has dementia: a Delphi expert consensus study.

K S Bond, A F Jorm, B A Kitchener, C M Kelly, K J Chalmers

Abstract readConsensus Statement
In one paragraph

Article in BMC geriatrics, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers.

0numbers the graph read from it
0cells of the map it votes in
9citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

9 citing papers in PubMed.

  1. Evaluation of the Older Person Mental Health First Aid Course: Effects on Knowledge, Stigmatizing Attitudes, and Helping Behaviors.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2026
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

K S BondMental Health First Aid Australia, Level 6, 369 Royal Parade, Parkville, VIC, 3052, Australia. kathybond@mhfa.com.au.
A F JormCentre for Mental Health, Melbourne School of Population and Global Health, The University of Melbourne, Level 4, 207 Bouverie Street, Parkville, VIC, 3010, Australia.
B A KitchenerMental Health First Aid Australia, Level 6, 369 Royal Parade, Parkville, VIC, 3052, Australia.
C M KellyMental Health First Aid Australia, Level 6, 369 Royal Parade, Parkville, VIC, 3052, Australia.
K J ChalmersMental Health First Aid Australia, Level 6, 369 Royal Parade, Parkville, VIC, 3052, Australia.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundAssisting a person with dementia can lead to significant carer burden and possible negative outcomes for the person. Using the Delphi method, this study developed expert consensus guidelines for how family and non-professional carers should assist a person who is developing cognitive impairment, or has dementia or delirium.

methodsA systematic search of websites, books and journal articles was conducted to develop a questionnaire containing items about the knowledge, skills and actions needed for assisting a person who is developing cognitive impairment, or has dementia or delirium. These items were rated over three rounds by two international expert panels comprising professionals specialising in research or treatment of dementia, and dementia carer advocates.

resultsA total of 65 participants (43 in the professional panel and 22 in the carer advocate panel) completed all three survey rounds. Of the 656 survey items that were rated, a total of 389 items were endorsed by at least 80 % of each panel. The endorsed items formed the basis of a guidelines document that explains what family and non-professional carers need to know and do when assisting a person who is developing cognitive impairment, or has dementia or delirium.

conclusionsThe two groups of experts were able to reach substantial consensus on how to assist a person who is developing cognitive impairment, or has dementia or delirium.

Indexed as

CaregiversCognitive DysfunctionCompassion FatigueCost of IllnessDementiaNeeds AssessmentAdultAgedConsensusDelphi TechniqueFemaleGuidelines as TopicHealth Knowledge, Attitudes, PracticeHumansMaleSurveys and QuestionnairesConfusionDeliriumDelphi methodDementiaDementia carerDementia guidelines

Identifiers

PMID27387756
PMCPMC4936264

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.