Evidence map›Paper›PMID 27385664›Full record

ArticleJournal of pediatric oncology nursing : official journal of the Association of Pediatric Oncology Nurses

Patient/Family Education for Newly Diagnosed Pediatric Oncology Patients.

Wendy Landier, JoAnn Ahern, Lamia P Barakat, Smita Bhatia, Kristin M Bingen, Patricia G Bondurant, Susan L Cohn, Sarah K Dobrozsi, Maureen Haugen, Ruth Anne Herring and 11 more

2 registry-linked trialsAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Journal of pediatric oncology nursing : official journal of the Association of Pediatric Oncology Nurses. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to 2 registered trials, which are not on this map. Cited by 30 papers, 3 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
30citing papers in PubMed, 3 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT03752801 completednot on this map

Improving Quality and Consistency in Family Education Prior to First Discharge Following Pediatric Cancer Diagnosis

TypeobservationalSponsorThe Hospital for Sick ChildrenRan2018 to 2019Enrolled67ConditionsOncology
NCT04330833 nacompletednot on this map

Informational Meetings for Planning and Coordinating Treatment

TypeinterventionalSponsorIndiana UniversityRan2020 to 2025Enrolled111ConditionsEnd of Life, Communication, Cancer MetastaticArmsNovel Communication Intervention, Enhanced Usual Care Parent Education
3 · Its place in the literature

Who cites it

30 citing papers in PubMed, 3 syntheses or guidelines pooled it.

  1. Pooled it
  2. Pooled it
  3. Pooled it
  4. Integrating Physical Activity and Family Health Education into Pediatric Oncology Outpatient Care: ATIVAONCO Project.Journal of cancer education : the official journal of the American Association for Cancer Education · 2026
    Article
  5. Understanding Physician Referral for Chimeric Antigen Receptor T-Cell (CAR-T) Therapy.Journal of cancer education : the official journal of the American Association for Cancer Education · 2026
    Article
  6. Article
  7. Improving Pediatric Oncology Knowledge Through Pharmaceutical Health Education.Journal of cancer education : the official journal of the American Association for Cancer Education · 2025
    Article
  8. Article
  9. Article
  10. Article
  11. Article
  12. Article
  13. Article
  14. Article
  15. Review
  16. Article
  17. Article
  18. Article
  19. Few guidelines offer recommendations on how to assess and manage anxiety and distress in children with cancer: a content analysis.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2021
    Review
  20. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

21 authors.

Wendy Landier1 University of Alabama at Birmingham, AL, USA.
JoAnn Ahern2 Western Connecticut Health Network, Danbury, CT, USA.
Lamia P Barakat3 Children's Hospital of Philadelphia, Philadelphia, PA, USA.
Smita Bhatia1 University of Alabama at Birmingham, AL, USA.
Kristin M Bingen4 Medical College of Wisconsin, Milwaukee, WI, USA.
Patricia G Bondurant5 Transform Healthcare Consulting, LLC, Cincinnati, OH, USA.
Susan L Cohn6 University of Chicago Comprehensive Cancer Center, Chicago, IL, USA.
Sarah K Dobrozsi4 Medical College of Wisconsin, Milwaukee, WI, USA.
Maureen Haugen7 Ann & Robert H. Lurie Children's Hospital of Chicago, Chicago, IL, USA.
Ruth Anne Herring8 Cook Children's Medical Center, Fort Worth, TX, USA.
Mary C Hooke9 University of Minnesota School of Nursing, Minneapolis, MN, USA.
Melissa Martin10 Children's Healthcare of Atlanta, Atlanta, GA, USA.
Kathryn Murphy11 Children's Hospital of Wisconsin, Milwaukee, WI, USA.
Amy R Newman4 Medical College of Wisconsin, Milwaukee, WI, USA.
Cheryl C Rodgers12 Duke University School of Nursing, Durham, NC, USA.
Kathleen S Ruccione13 Azusa Pacific University School of Nursing, Azusa, CA, USA.
Jeneane Sullivan3 Children's Hospital of Philadelphia, Philadelphia, PA, USA.
Marianne Weiss14 Marquette University College of Nursing, Milwaukee, WI, USA.
Janice Withycombe15 Emory University School of Nursing, Atlanta, GA, USA.
Lise Yasui16 Children's Oncology Group, Monrovia, CA, USA.
Marilyn Hockenberry12 Duke University School of Nursing, Durham, NC, USA.

Funding

NCTN BIQSFP ANBL1531 (NRT)U10CA180886 · NCI · PUBLIC HEALTH INSTITUTE · PI Douglas S. Hawkins · 2014 to 2026
$390.6M
Patient/Family Education in Pediatric Oncology: State of the Science SymposiumR13CA196165 · NCI · CHILDREN'S HOSP OF PHILADELPHIA · PI HOCKENBERRY, MARILYN J, LANDIER, WENDY · 2015 to 2015
$15k
NCI NIH HHS R13 CA196165NCI NIH HHS U10 CA180886
6 · The paper itself

Abstract

There is a paucity of data to support evidence-based practices in the provision of patient/family education in the context of a new childhood cancer diagnosis. Since the majority of children with cancer are treated on pediatric oncology clinical trials, lack of effective patient/family education has the potential to negatively affect both patient and clinical trial outcomes. The Children's Oncology Group Nursing Discipline convened an interprofessional expert panel from within and beyond pediatric oncology to review available and emerging evidence and develop expert consensus recommendations regarding harmonization of patient/family education practices for newly diagnosed pediatric oncology patients across institutions. Five broad principles, with associated recommendations, were identified by the panel, including recognition that (1) in pediatric oncology, patient/family education is family-centered; (2) a diagnosis of childhood cancer is overwhelming and the family needs time to process the diagnosis and develop a plan for managing ongoing life demands before they can successfully learn to care for the child; (3) patient/family education should be an interprofessional endeavor with 3 key areas of focus: (a) diagnosis/treatment, (b) psychosocial coping, and (c) care of the child; (4) patient/family education should occur across the continuum of care; and (5) a supportive environment is necessary to optimize learning. Dissemination and implementation of these recommendations will set the stage for future studies that aim to develop evidence to inform best practices, and ultimately to establish the standard of care for effective patient/family education in pediatric oncology.

Indexed as

Professional-Family RelationsChildChild, PreschoolFemaleHealth EducationHumansMaleMedical OncologyNeoplasmsParent-Child RelationsParentsPediatricsPractice Guidelines as Topicchildhood cancerChildren’s Oncology Groupnew diagnosispatient/family education

Identifiers

PMID27385664
PMCPMC5215987

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.