ArticleSociological methods & research2012
LINKING SURVEY AND ADMINISTRATIVE RECORDS: MECHANISMS OF CONSENT.
Article in Sociological methods & research, 2012. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
16 citing papers in PubMed, 1 synthesis or guideline pooled it.
- A systematic literature review of health consumer attitudes towards secondary use and sharing of health administrative and clinical trial data: a focus on privacy, trust, and transparency.Systematic reviews · 2020Pooled it
- Willingness of population health survey participants to provide personal health information and biological samples.BMC public health · 2024Article
- Linking health survey data with health insurance data: methodology, challenges, opportunities and recommendations for public health research. An experience from the HISlink project in Belgium.Archives of public health = Archives belges de sante publique · 2023Article
- Bagasse dust exposure and chronic respiratory symptoms among workers in the Metehara and Wonji sugar factories in Ethiopia: a longitudinal study design.BMJ open respiratory research · 2023Article
- Primary and secondary data in emergency medicine health services research - a comparative analysis in a regional research network on multimorbid patients.BMC medical research methodology · 2023Observational
- Enhancing Human Biomonitoring Studies through Linkage to Administrative Registers-Status in Europe.International journal of environmental research and public health · 2022Article
- Chronic pain patients' willingness to share personal identifiers on the web for the linkage of medico-administrative claims and patient-reported data: The chronic pain treatment cohort.Pharmacoepidemiology and drug safety · 2021Article
- A systematic literature review of attitudes towards secondary use and sharing of health administrative and clinical trial data: a focus on consent.Systematic reviews · 2021Article
- Sources of potential bias when combining routine data linkage and a national survey of secondary school-aged children: a record linkage study.BMC medical research methodology · 2020Article
- National data opt out programme: consequences for maternity statistics in England.International journal of population data science · 2020Article
- Consent to data linkage in a large online epidemiological survey of 18-23 year old Australian women in 2012-13.BMC medical research methodology · 2019Article
- Data Resource Profile: Cohort and Longitudinal Studies Enhancement Resources (CLOSER).International journal of epidemiology · 2019Article
- Record linkage to enhance consented cohort and routinely collected health data from a UK birth cohort.International journal of population data science · 2019Article
- The relationship between linkage refusal and selected health conditions of survey respondents.Survey practice · 2016Article
- Analysis of four studies in a comparative framework reveals: health linkage consent rates on British cohort studies higher than on UK household panel surveys.BMC medical research methodology · 2014Article
- Linking Survey and Twitter Data: Informed Consent, Disclosure, Security, and Archiving.Journal of empirical research on human research ethics : JERHREArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors.
Funding
Abstract
Survey records are increasingly being linked to administrative databases to enhance the survey data and increase research opportunities for data users. A necessary prerequisite to linking survey and administrative records is obtaining informed consent from respondents. Obtaining consent from all respondents is a difficult challenge and one that faces significant resistance. Consequently, data linkage consent rates vary widely from study-to-study. Several studies have found significant differences between consenters and non-consenters on socio-demographic variables, but no study has investigated the underlying mechanisms of consent from a theory-driven perspective. In this study, we describe and test several hypotheses related to respondents' willingness to consent to an earnings and benefit data linkage request based on mechanisms related to financial uncertainty, privacy concerns, resistance towards the survey interview, level of attentiveness during the interview, the respondents' preexisting relationship with the administrative data agency, and matching respondents and interviewers on observable characteristics. The results point to several implications for survey practice and suggestions for future research.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.