ArticleAmerican journal of nephrology2016
Racial Disparities in End-of-Life Communication and Preferences among Chronic Kidney Disease Patients.
Article in American journal of nephrology, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 36 papers, 2 of them syntheses that pooled it.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
36 citing papers in PubMed, 2 syntheses or guidelines pooled it, 61 citations in OpenAlex.
- How does ethnicity affect presence of advance care planning in care records for individuals with advanced disease? A mixed-methods systematic review.BMC palliative care · 2023Pooled it
- A Systematic Review of Race/Ethnicity and Parental Treatment Decision-Making.Clinical pediatrics · 2018Pooled it
- Health Literacy Matters More Than Experience for Advance Care Planning Knowledge Among Older Adults.Journal of the American Geriatrics Society · 2019Trial
- A Scoping Review of Toolkits Addressing Ethical Issues in Health Registry and Clinical Research Enrollment Among African Americans With CKD.Kidney medicine · 2026Review
- Prospective surveillance study of conservative kidney care in the UK and the Republic of Ireland: a British Paediatric Surveillance Unit study.Archives of disease in childhood · 2026Article
- Equity in Using Artificial Intelligence Mortality Predictions to Target Goals of Care Documentation.Journal of general internal medicine · 2024Article
- Experiences and access of palliative and end of life care for older people from minority ethnic groups: a scoping review.BMC palliative care · 2024Article
- Advance Care Planning and Palliative Care Consultation in Kidney Transplantation.American journal of kidney diseases : the official journal of the National Kidney Foundation · 2024Article
- Sociodemographic Disparities in Adults with Kidney Failure: A Meta-Analysis.Diseases (Basel, Switzerland) · 2024Review
- Article
- Effect of ethnicity and socioeconomic deprivation on uptake of renal supportive care and dialysis decision-making in older adults.Clinical kidney journal · 2023Article
- Kidney Organoid Derived from Human Pluripotent and Adult Stem Cells for Disease Modeling.Development & reproduction · 2023Article
- Kidney Failure Patients' Perceptions and Definitions of Health: A Qualitative Study.Kidney medicine · 2023Article
- Racial Disparities in Health Beliefs and Advance Care Planning Among Patients Receiving Maintenance Dialysis.Journal of pain and symptom management · 2023Article
- A Decade of Studying Drivers of Disparities in End-of-Life Care for Black Americans: Using the NIMHD Framework for Health Disparities Research to Map the Path Ahead.Journal of pain and symptom management · 2022Review
- Engaging African American family Caregivers in Developing a Culturally-responsive Interview Guide: A Multiphase Process and Approach.Journal of pain and symptom management · 2022Article
- Preparedness for Serious Illnesses: Impact of Ethnicity, Mistrust, Perceived Discrimination, and Health Communication.The American journal of hospice & palliative care · 2022Article
- Characterizing uncertainty in goals-of-care discussions among black and white patients: a qualitative study.BMC palliative care · 2022Article
- Advance care planning among African American patients on haemodialysis and their end-of-life care preferences.Journal of renal care · 2021Article
- Completion of advance directives among African Americans and Whites adults.Patient education and counseling · 2021Article
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Authors and funding
9 authors at 3 institutions in 2 countries.
Funding
Abstract
backgroundPrevious studies on end-of-life (EOL) care among patients with chronic kidney disease (CKD) have been largely limited to White hemodialysis patients. In this study, we sought to explore racial variability in EOL communication, care preferences and advance care planning (ACP) among patients with advanced CKD prior to decisions regarding the initiation of dialysis.
methodsWe performed a cross-sectional study between 2013 and 2015 of Black and White patients with stage IV or V CKD (per the Modified Diet in Renal Disease estimation of GFR <30 ml/min/1.73 m2) from 2 academic centers in Boston. We assessed experiences with EOL communication, ACP, EOL care preferences, hospice knowledge, spiritual/religious and cultural beliefs, and distrust of providers.
resultsAmong 152 participants, 41% were Black. Black patients were younger, had less education, and lower income than White patients (all p < 0.01). Black patients also had less knowledge of hospice compared to White patients (17 vs. 61%, p < 0.01). A small fraction of patients (8%) reported having EOL discussions with their nephrologists and the majority had no advance directives. In multivariable analyses, Blacks were more likely to have not communicated EOL preferences (adjusted OR 2.70, 95% CI 1.08-6.76) and more likely to prefer life-extending treatments (adjusted OR 3.06, 95% CI 1.23-7.60) versus Whites.
conclusionsAs Black and White patients with advanced CKD differ in areas of EOL communication, preferences, and hospice knowledge, future efforts should aim to improve patient understanding and promote informed decision-making.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.