ArticleHealth and quality of life outcomes2016
The COPD-SIB: a newly developed disease-specific item bank to measure health-related quality of life in patients with chronic obstructive pulmonary disease.
Article in Health and quality of life outcomes, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.
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Who cites it
6 citing papers in PubMed.
- Applying multidimensional computerized adaptive testing to the MSQOL-54: a simulation study.Health and quality of life outcomes · 2023Article
- The TBI-CareQOL Measurement System: Development and Preliminary Validation of Health-Related Quality of Life Measures for Caregivers of Civilians and Service Members/Veterans With Traumatic Brain Injury.Archives of physical medicine and rehabilitation · 2019Article
- Measuring Patient-Reported Outcomes Adaptively: Multidimensionality Matters!Applied psychological measurement · 2018Article
- Item usage in a multidimensional computerized adaptive test (MCAT) measuring health-related quality of life.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2017Article
- The effectiveness of a nurse-led illness perception intervention in COPD patients: a cluster randomised trial in primary care.ERJ open research · 2017Article
- Emotional Suppression and Hypervigilance in Military Caregivers: Relationship to Negative and Positive Affect.The Journal of head trauma rehabilitationArticle
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Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundHealth-related quality of life (HRQoL) is widely used as an outcome measure in the evaluation of treatment interventions in patients with chronic obstructive pulmonary disease (COPD). In order to address challenges associated with existing fixed-length measures (e.g., too long to be used routinely, too short to ensure both content validity and reliability), a COPD-specific item bank (COPD-SIB) was developed.
methodsItems were selected based on literature review and interviews with Dutch COPD patients, with a strong focus on both content validity and item comprehension. The psychometric quality of the item bank was evaluated using Mokken Scale Analysis and parametric Item Response Theory, using data of 666 COPD patients.
resultsThe final item bank contains 46 items that form a strong scale, tapping into eight important themes that were identified based on literature review and patient interviews: Coping with disease/symptoms, adaptability; Autonomy; Anxiety about the course/end-state of the disease, hopelessness; Positive psychological functioning; Situations triggering or enhancing breathing problems; Symptoms; Activity; Impact.
conclusionsThe 46-item COPD-SIB has good psychometric properties and content validity. Items are available in Dutch and English. The COPD-SIB can be used as a stand-alone instrument, or to inform computerised adaptive testing.
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