ArticleHealth expectations : an international journal of public participation in health care and health policy2017
Patient involvement in rheumatology outpatient service design and delivery: a case study.
Article in Health expectations : an international journal of public participation in health care and health policy, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers, 2 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
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Who cites it
16 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Consumers' and health providers' views and perceptions of partnering to improve health services design, delivery and evaluation: a co-produced qualitative evidence synthesis.The Cochrane database of systematic reviews · 2023Pooled it
- Evaluating health service outcomes of public involvement in health service design in high-income countries: a systematic review.BMC health services research · 2021Pooled it
- Conceptualizing culture change as an impact metric. A scoping review and abductive thematic analysis of culture-related outcomes from patient and public involvement in healthcare and health research.Research involvement and engagement · 2025Review
- Understanding the Patient Perspective When Designing Future Rehabilitation Interventions after Hip or Knee Replacement Surgery-A Patient and Public Involvement Exercise.Medicina (Kaunas, Lithuania) · 2023Article
- Patient engagement in the development and delivery of healthcare services: a systematic scoping review.BMJ open quality · 2023Article
- Primary healthcare professionals' experience with patient participation in healthcare service development: A qualitative study.PEC innovation · 2022Article
- Development of a patient-led clinic visit framework: a case study navigating a patient's journey for rheumatology outpatient clinic consultations in England and Wales.BMC rheumatology · 2022Article
- Patient and public involvement in an international rheumatology translational research project: an evaluation.BMC rheumatology · 2022Article
- Organisation, influence, and impact of patient advisory boards in rehabilitation institutions-an explorative cross-sectional study.BMC musculoskeletal disorders · 2022Article
- Mapping the role of patient and public involvement during the different stages of healthcare innovation: A scoping review.Health expectations : an international journal of public participation in health care and health policy · 2022Article
- The patient as a prosumer of healthcare: insights from a bibliometric-interpretive review.Journal of health organization and management · 2022Article
- Mobile App-based documentation of patient-reported outcomes - 3-months results from a proof-of-concept study on modern rheumatology patient management.Arthritis research & therapy · 2021Article
- Patient involvement in quality improvement - a 'tug of war' or a dialogue in a learning process to improve healthcare?BMC health services research · 2020Article
- Needs, Experiences, and Views of People With Rheumatic and Musculoskeletal Diseases on Self-Management Mobile Health Apps: Mixed Methods Study.JMIR mHealth and uHealth · 2020Article
- How might patient involvement in healthcare quality improvement efforts work-A realist literature review.Health expectations : an international journal of public participation in health care and health policy · 2019Review
- The voice of patients in system redesign: A case study of redesigning a centralized system for intake of referrals from primary care to rheumatologists for patients with suspected rheumatoid arthritis.Health expectations : an international journal of public participation in health care and health policy · 2019Article
Corrections and comments
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Authors and funding
8 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundPatient involvement is increasingly recognized as important within the UK National Health Service to ensure that services delivered are relevant to users' needs. Organizations are encouraged to work with service users to achieve excellence in care. Patient education can improve health outcomes and reduce health-care costs. Mobile technologies could play a vital role in this.
aimPatient-centred development of innovative strategies to improve the experience of rheumatology outpatients. CASE STUDY: The Group Rheumatology Initiative Involving Patients (GRIIP) project was set up in 2013 as a joint venture between patients, clinicians, academics and management at a London hospital. The project saw (i) the formation of an independent patient group which provided suggestions for service improvement - outcomes included clearer signs in the outpatient waiting area, extended phlebotomy opening hours and better access to podiatry; (ii) a rolling patient educational evening programme initiated in 2014 with topics chosen by patient experts - feedback has been positive and attendance continues to grow; and (iii) a mobile application (app) co-designed with patients launched in 2015 which provides relevant information for outpatient clinic attendees and data capture for clinicians - downloads have steadily increased as users adopt this new technology.
conclusionPatients can effectively contribute to service improvement provided they are supported, respected as equals, and the organization is willing to undergo a cultural change.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.