ArticleClinical nephrology2016
A diagnosis of chronic kidney disease: despite fears patients want to know early.
Article in Clinical nephrology, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers, 2 of them syntheses that pooled it.
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
18 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Pooled it
- Nitride oxide synthase 3 and klotho gene polymorphisms in the pathogenesis of chronic kidney disease and age-related cognitive impairment: a systematic review and meta-analysis.F1000Research · 2020Pooled it
- Educating, Contextualizing, and Deferring: Qualitative Investigation of Physician Communication About Chronic Kidney Disease.Healthcare (Basel, Switzerland) · 2026Article
- Rethinking Models of Chronic Kidney Disease Care: A Narrative Review.Kidney & blood pressure research · 2025Review
- Patients' anxieties and fears: a comparison between transrectal prostate biopsy and prostate MRI.Translational andrology and urology · 2024Article
- Early Identification and Management of Chronic Kidney Disease: A Narrative Review of the Crucial Role of Primary Care Practitioners.Advances in therapy · 2024Review
- Dealing with an uncertain future: a survey study on what patients with chronic kidney disease actually want to know.Clinical kidney journal · 2024Article
- Patient and Clinician Perspectives: To Create a Better Future for Chronic Kidney Disease, We Need to Talk About Our Kidneys.Advances in therapy · 2024Review
- Exploring Patient Needs and Preferences in CKD Education: A Cross-Sectional Survey Study.Kidney360 · 2024Article
- Controlling Hypertension through Education and Coaching in Kidney Disease (CHECK-D): protocol of a cluster randomised controlled trial.BMJ open · 2023Article
- Patient Management and Clinical Outcomes Associated with a Recorded Diagnosis of Stage 3 Chronic Kidney Disease: The REVEAL-CKD Study.Advances in therapy · 2023Observational
- "The Disease Awareness Innovation Network" for chronic kidney disease identification in general practice.Journal of nephrology · 2022Article
- Factors influencing home blood pressure monitor ownership in a large clinical trial.Journal of human hypertension · 2022Article
- Understanding kidney disease in rural central Uganda - Findings from a qualitative study.Global public health · 2020Article
- Provider perspectives on chronic kidney disease diagnosis delivery .Clinical nephrology · 2018Article
- Establishing the presence or absence of chronic kidney disease: Uses and limitations of formulas estimating the glomerular filtration rate.World journal of methodology · 2017Review
- Health Literacy and Medication Management in Chronic Kidney Disease.Health literacy research and practice · 2017Article
- Article
Corrections and comments
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Authors and funding
5 authors.
Funding
Abstract
aimsWe elicited input from patients on their experience getting a chronic kidney disease (CKD) diagnosis to use for optimizing current CKD education interventions.
methodsWe performed structured oneon-one patient interviews. Interviews were recorded, transcribed, and coded using modified grounded theory. Participants had CKD, were not on dialysis, and were recruited from general nephrology practices.
results49 patients enrolled from January to October 2014. Interviews revealed four major themes: 1. Reaction to diagnosis - patients described emotional reactions and subsequent behavior changes (152 statements); 2. Timing of diagnosis - patients described how they were told about their diagnosis and expectations of when a person should be told (149 statements); 3. Mediators in diagnosis delivery - patients discussed things that helped or hindered understanding and acceptance of their diagnosis (64 statements), and 4. Perceptions of diagnosis terminology - patients discussed perceptions about diagnostic terms (e.g., "chronic kidney disease") (91 statements). Cross-sectional study design and setting limit interpretation of causality and generalizability.
conclusionsPatients experience fear but prefer early diagnosis communication. More work is needed to define evidence-based guidelines for diagnosis messaging across the spectrum of care.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.