SynthesisBMJ open2016
Patients' experiences of deep brain stimulation for Parkinson's disease: a qualitative systematic review and synthesis.
Synthesis in BMJ open, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
13 citing papers in PubMed, 39 citations in OpenAlex.
- Exploring gendered experiences of Parkinson's disease patients and their carers: implications for decision-making in Deep Brain Stimulation.Internal and emergency medicine · 2025Article
- Know DBS: patient perceptions and knowledge of deep brain stimulation in Parkinson's disease.Therapeutic advances in neurological disorders · 2024Article
- Article
- Deep Brain Stimulation in Early-Stage Parkinson's Disease: Patient Experience after 11 Years.Brain sciences · 2022Article
- Knowledge, Attitude, and Perceptions about Deep Brain Stimulation for Parkinson's Disease: Observations from a Single Indian Center.Journal of movement disorders · 2021Article
- Article
- Perspectives on Deep Brain Stimulation and Its Earlier Use for Parkinson's Disease: A Qualitative Study of US Patients.Brain sciences · 2020Article
- Impact of deep brain stimulation on people with Parkinson's disease: A mixed methods feasibility study exploring lifespace and community outcomes.Hong Kong journal of occupational therapy : HKJOT · 2019Article
- Patient's lived experience with DBS between medical research and care: some legal implications.Medicine, health care, and philosophy · 2019Article
- Deep Brain Stimulation (DBS) experiences: an ethnographic approach to their expression on the Internet forums.Medicine, health care, and philosophy · 2019Article
- Patient and physician perceptions of disease management in Parkinson's disease: results from a US-based multicenter survey.Neuropsychiatric disease and treatment · 2019Article
- Seeing the quality improvement forest through the quality improvement trees: A meta-synthesis of case studies in Florida and Georgia.SAGE open medicine · 2019Article
- The Lived Experiences of Deep Brain Stimulation in Parkinson's Disease: An Interpretative Phenomenological Analysis.Parkinson's disease · 2019Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
8 authors at 4 institutions in 1 country.
Funding
Abstract
objectiveTo review and synthesise qualitative research studies that have explored patients' experience of deep brain stimulation (DBS) in advanced Parkinson's disease (PD).
designSystematic review and meta-synthesis of 7 original papers, using metaethnography.
settingStudies conducted in Denmark, France and Sweden.
participants116 patients who had undergone DBS and 9 spouses of patients.
resultsPrior to surgery, the experience of advancing PD is one of considerable loss and a feeling of loss of control. There are significant hopes for what DBS can bring. Following surgery, a sense of euphoria is described by many, although this does not persist and there is a need for significant transitions following this. We suggest that normality as a concept is core to the experience of DBS and that a sense of control may be a key condition for normality. Experience of DBS for patients and spouses, and of the transitions that they must undertake, is influenced by their hopes of what surgery will enable them to achieve, or regain (ie, a new normality).
conclusionsThere is a need for further qualitative research to understand the nature of these transitions to inform how best patients and their spouses can be supported by healthcare professionals before, during and after DBS. In assessing the outcomes of DBS and other treatments in advanced PD, we should consider how to capture holistic concepts such as normality and control. Studies that examine the outcomes of DBS require longer term follow-up.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.