ArticleThe Journal of asthma : official journal of the Association for the Care of Asthma2017
Perceptions and experiences underlying self-management and reporting of symptoms in teens with asthma.
Article in The Journal of asthma : official journal of the Association for the Care of Asthma, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 26 papers, 1 of them a synthesis that pooled it.
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
26 citing papers in PubMed, 1 synthesis or guideline pooled it, 55 citations in OpenAlex.
- Barriers and facilitators of effective self-management in asthma: systematic review and thematic synthesis of patient and healthcare professional views.NPJ primary care respiratory medicine · 2017Pooled it
- Adolescents' practical knowledge of asthma self-management and experiences in the context of acute asthma: a qualitative content analysis.The Journal of asthma : official journal of the Association for the Care of Asthma · 2023Trial
- Mixed-methods content and sentiment analysis of adolescents' voice diaries describing daily experiences with asthma and self-management decision-making.Clinical and experimental allergy : journal of the British Society for Allergy and Clinical Immunology · 2019Trial
- Fostering Effective Asthma Self-Management Transfer in High-Risk Children: Gaps and Opportunities for Family Engagement.Journal of pediatric health care : official publication of National Association of Pediatric Nurse Associates & PractitionersTrial
- Do cognitive tests capture symptoms that matter to people with Huntington's disease?Scientific reports · 2025Article
- Perspective Mapping: Tutorial for Collecting Quantifiable Qualitative Interview Data.Journal of medical Internet research · 2025Article
- Asthma Symptom Self-Monitoring Methods for Children and Adolescents: Present and Future.Children (Basel, Switzerland) · 2025Review
- Disseminating a health information website to teens using a three-pronged approach with social media outreach.PEC innovation · 2024Article
- Causal relationships among self-management behaviors, symptom control, health-related quality of life and the influencing factors among Thai adolescents with asthma.International journal of nursing sciences · 2023Article
- Mapping Relevance of Digital Measures to Meaningful Symptoms and Impacts in Early Parkinson's Disease.Journal of Parkinson's disease · 2023Article
- Children's and adolescents' descriptors of asthma symptoms: An integrative review.International journal of nursing studies advances · 2022Review
- Are Mid to Late Adolescents with Asthma Ready for Transition of Care? A Qualitative Study.Children (Basel, Switzerland) · 2022Article
- Sustained Effects From a School-Based Intervention Pilot Study for Children With Asthma and Anxiety.The Journal of school nursing : the official publication of the National Association of School Nurses · 2022Article
- Understanding the journeys of patients with an asthma exacerbation requiring urgent therapy at a primary care clinic.BMC pulmonary medicine · 2022Article
- Physician's experience on managing asthma in adolescents: results of the International AMADO (Asthma Management in ADOlescents) survey.Asia Pacific allergy · 2021Article
- Validation of an app-based portable spirometer in adolescents with asthma.The Journal of asthma : official journal of the Association for the Care of Asthma · 2021Article
- A mixed-methods analysis of younger adults' perceptions of asthma, self-management, and preventive care: "This isn't helping me none".Clinical and experimental allergy : journal of the British Society for Allergy and Clinical Immunology · 2021Article
- Associations between overweight and obesity and asthma outcomes in urban adolescents.The Journal of asthma : official journal of the Association for the Care of Asthma · 2020Article
- A Mixed-methods Study Examining Inhaler Carry and Use among Children at School.The Journal of asthma : official journal of the Association for the Care of Asthma · 2020Observational
- How young children learn independent asthma self-management: a qualitative study in Malaysia.Archives of disease in childhood · 2020Article
Corrections and comments
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Authors and funding
4 authors at 2 institutions in 1 country.
Funding
Abstract
backgroundTeens often have inadequate asthma self-management and control. However, little is known of their perceptions of or rationales for self-management behaviors.
objectivesTo explore how teens self-manage asthma, including experiences, perceptions, responses to and reporting of symptoms.
methodsA case-based, qualitative-descriptive design was used. Data were collected from minority and non-minority teens with controlled and uncontrolled asthma and their respective parents (N = 28). There were four data-collection points, including: (1) a primary teen interview; (2) parent interview; (3) 2-week self-management voice-diary; and (4) follow-up teen interview, incorporating symptom-response card-sorting to map symptoms and associated self-management responses. Seventy data sources were included in the analysis.
resultsTeens thought of their asthma symptoms as normal or unusual relative to their personal baseline symptom pattern; Those with uncontrolled asthma normalized higher levels of asthma symptoms than their counterparts with controlled asthma. Second, teens' decisions to treat symptoms of asthma with rescue medication were based on perceived benefits, burdens and accessibility of treatment balanced against perceived normalcy of symptoms. Teens with uncontrolled asthma had substantially higher treatment thresholds and delayed responses to symptoms compared to controlled peers. Third, teens never reported perceived normal symptoms of asthma to parents or providers, who were thus only aware of unusual or visible/audible symptoms.
conclusionsTeen's perceptions of symptoms and understanding of what is normal is the basis for self-management decisions. Improving self-management will likely entail modifying perceptions of symptoms and benefits/burdens of treatment to achieve healthier self-management patterns.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.