Evidence map›Paper›PMID 27320471›Full record

ArticleAmerican journal of preventive medicine2016

Community Health Workers as Support for Sickle Cell Care.

Lewis L Hsu, Nancy S Green, E Donnell Ivy, Cindy E Neunert, Arlene Smaldone, Shirley Johnson, Sheila Castillo, Amparo Castillo, Trevor Thompson, Kisha Hampton and 10 more

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in American journal of preventive medicine, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 39 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
39citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

39 citing papers in PubMed, 1 synthesis or guideline pooled it.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

20 authors.

Lewis L HsuDepartment of Pediatrics, University of Illinois, Chicago, Illinois.
Nancy S GreenDepartment of Pediatrics, Columbia University, New York, New York. Electronic address: nsg11@cumc.columbia.edu.
E Donnell IvyHealth Resources and Services Administration, Rockville, Maryland.
Cindy E NeunertDepartment of Pediatrics, Columbia University, New York, New York.
Arlene SmaldoneDepartment of Pediatrics, Columbia University, New York, New York.
Shirley JohnsonDepartment of Medicine, Virginia Commonwealth University, Richmond, Virginia.
Sheila CastilloDepartment of Pediatrics, University of Illinois, Chicago, Illinois.
Amparo CastilloDepartment of Pediatrics, University of Illinois, Chicago, Illinois.
Trevor ThompsonSickle Cell Disease Foundation of Tennessee, Memphis, Tennessee.
Kisha HamptonIndiana Hemophilia and Thrombosis Center, Indianapolis, Indiana.
John J StrouseDepartment of Pediatrics, Johns Hopkins University School of Medicine, Baltimore, Maryland.
Rosalyn StewartDepartment of Pediatrics, Johns Hopkins University School of Medicine, Baltimore, Maryland.
TaLana HughesSickle Cell Disease Association of Illinois, Chicago, Illinois.
Sonja BanksSickle Cell Disease Association of America, Baltimore, Maryland.
Kim Smith-WhitleyDepartment of Pediatrics, Children's Hospital of Philadelphia, Philadelphia, Pennsylvania.
Allison KingDepartment of Pediatrics, Washington University, St. Louis, Missouri.
Mary BrownSickle Cell Disease Foundation of California, Los Angeles, California.
Kwaku Ohene-FrempongDepartment of Pediatrics, Children's Hospital of Philadelphia, Philadelphia, Pennsylvania.
Wally R SmithDepartment of Medicine, Virginia Commonwealth University, Richmond, Virginia.
Molly MartinDepartment of Pediatrics, University of Illinois, Chicago, Illinois.

Funding

Enhancing Use of Hydroxyurea In Sickle Cell Disease Using Patient NavigatorsR18HL112737 · NHLBI · VIRGINIA COMMONWEALTH UNIVERSITY · PI SMITH, WALLY R · 2012 to 2017
$3.3M
Hydroxyurea Adherence for Personal Best in Sickle Cell Treatment: HABITR21NR013745 · NINR · COLUMBIA UNIVERSITY HEALTH SCIENCES · PI GREEN, NANCY S., SMALDONE, ARLENE M · 2013 to 2014
$412k
NHLBI NIH HHS R18 HL112737NINR NIH HHS R21 NR013745
6 · The paper itself

Abstract

Community health workers are increasingly recognized as useful for improving health care and health outcomes for a variety of chronic conditions. Community health workers can provide social support, navigation of health systems and resources, and lay counseling. Social and cultural alignment of community health workers with the population they serve is an important aspect of community health worker intervention. Although community health worker interventions have been shown to improve patient-centered outcomes in underserved communities, these interventions have not been evaluated with sickle cell disease. Evidence from other disease areas suggests that community health worker intervention also would be effective for these patients. Sickle cell disease is complex, with a range of barriers to multifaceted care needs at the individual, family/friend, clinical organization, and community levels. Care delivery is complicated by disparities in health care: access, delivery, services, and cultural mismatches between providers and families. Current practices inadequately address or provide incomplete control of symptoms, especially pain, resulting in decreased quality of life and high medical expense. The authors propose that care and care outcomes for people with sickle cell disease could be improved through community health worker case management, social support, and health system navigation. This paper outlines implementation strategies in current use to test community health workers for sickle cell disease management in a variety of settings. National medical and advocacy efforts to develop the community health workforce for sickle cell disease management may enhance the progress and development of "best practices" for this area of community-based care.

Indexed as

Anemia, Sickle CellChronic DiseaseCommunity Health WorkersDelivery of Health CareDisease ManagementHumansQuality of Life

Identifiers

PMID27320471
PMCPMC4918511

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.