ArticleAmerican journal of preventive medicine2016
Newborn Screening Programs and Sickle Cell Disease: A Public Health Services and Systems Approach.
Article in American journal of preventive medicine, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
7 citing papers in PubMed.
- Sickle cell disease 115 years later: improving health outcomes through policy, research, and collaboration, to achieve health equity.Frontiers in health services · 2026Article
- Article
- Newborn Screening for Sickle Cell Disease in Catalonia between 2015 and 2022-Epidemiology and Impact on Clinical Events.International journal of neonatal screening · 2024Article
- Advances in the Management of Sickle Cell Disease: New Concepts and Future Horizons.The journal of pediatric pharmacology and therapeutics : JPPT : the official journal of PPAG · 2022Article
- The Teen Symposium: Engaging Adolescents and Young Adults with Sickle Cell Disease in Clinical Care and Research.Clinical practice in pediatric psychology · 2020Article
- Reducing Health Care Disparities in Sickle Cell Disease: A Review.Public health reports (Washington, D.C. : 1974)Review
- Role of Primary Care in Bridging Gaps in the Health Care System for Vulnerable Children in the United States of America: A Sickle Cell Disease Case Study.Journal of primary care & community healthArticle
Corrections and comments
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Authors and funding
4 authors.
Funding
Abstract
introductionDespite universal newborn screening (NBS), children in the U.S. continue to experience morbidity and mortality from sickle cell disease and related causes. Recognizing that assessments of public health services and systems can improve public health system performance and ultimately health outcomes, this study examined variations in NBS program activities for sickle cell disease.
methodsA mixed methods study included (1) a 2009 survey of NBS programs based on ten essential public health services (N=39 states with ten or more sickle cell births over a 3-year period) and (2) key informant interviews in 2011 with 13 states that had sufficient Phase 1 survey scores, black births, and variability in state legislation and geography. Key informants were from 13 NBS programs, 22 sickle cell treatment centers, and ten advocacy organizations. Analyses were conducted in 2009-2014.
resultsConsiderable variability exists across states in program activities and roles. More programs reported activities oriented to care of individuals-ensuring access to services, coordination, and provider education; fewer reported planning and analysis activities oriented to statewide policy development and system change. Numbers of activities were not related to the number of affected births. In-depth interviews identified opportunities to enhance activities that support statewide comprehensive systems of care.
conclusionsNBS programs perform important public health roles that complement and enhance clinical services. Nationwide efforts are needed to enable NBS programs to strengthen population-based functions that are essential to ensuring quality of care for the entire population of children and families affected by sickle cell disease.
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Registered trials
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