ArticlePloS one2016
High Concordance between Self-Reported Adherence, Treatment Outcome and Satisfaction with Care Using a Nine-Item Health Questionnaire in InfCareHIV.
Article in PloS one, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers.
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Who cites it
17 citing papers in PubMed.
- Understanding viral blips in people with HIV on antiretroviral therapy: a nationwide Swedish cohort study of 4,210 individuals.BMC infectious diseases · 2026Article
- Comparative effectiveness of dolutegravir + lamivudine versus three-drug regimens in Swedish clinical practice: a nationwide study.Journal of the International AIDS Society · 2026Article
- Infant feeding knowledge among women living with HIV and their interaction with healthcare providers in a high-income setting: a longitudinal mixed methods study.International breastfeeding journal · 2024Article
- Difficult-to-treat HIV in Sweden: a cross-sectional study.BMC infectious diseases · 2024Article
- Cohort profile: InfCareHIV, a prospective registry-based cohort study of people with diagnosed HIV in Sweden.BMJ open · 2023Article
- Finnish HIV Quality of Care Register (FINHIV).BMJ open · 2022Article
- Psychosocial health in pregnancy and postpartum among women living with - and without HIV and non-pregnant women living with HIV living in the Nordic countries - Results from a longitudinal survey study.BMC pregnancy and childbirth · 2022Article
- Men and sexual and reproductive healthcare in the Nordic countries: a scoping review.BMJ open · 2021Article
- Patients' Satisfaction by SmileInHealthcare (Basel, Switzerland) · 2021Article
- Longitudinal trends and determinants of patient-reported side effects on ART-a Swedish national registry study.PloS one · 2020Article
- Article
- Sexuality and childbearing as it is experienced by women living with HIV in Sweden: a lifeworld phenomenological study.International journal of qualitative studies on health and well-being · 2018Article
- Article
- Validation of the Italian version of the Patient Reported Experience Measures for intermediate care services.Patient preference and adherence · 2017Article
- HIV drug therapy duration; a Swedish real world nationwide cohort study on InfCareHIV 2009-2014.PloS one · 2017Observational
- Delivery of HIV Antiretroviral Therapy Adherence Support Services by HIV Care Providers in the United States, 2013 to 2014.Journal of the International Association of Providers of AIDS CareArticle
- The experience of pregnancy among women living with HIV in Nordic countries: A qualitative narrative enquiry.Women's health (London, England)Article
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4 authors.
Funding
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Abstract
backgroundIn this cross-sectional study we present an integrated analysis of a self-reported Health Questionnaire and socio-demographic and treatment outcome data from the national Swedish HIV cohort, InfCareHIV.
objectivesTo evaluate the Health Questionnaire and identify the main determinants of adherence.
methodsA total of 2,846 patients answered a nine-item disease-specific Health Questionnaire between 2012 and 2014, corresponding to 44% of all active patients in the national InfCareHIV cohort. The questionnaire assessed patient related outcome measures (PROMs) regarding health and antiretroviral treatment (ART) and patient related experience measures (PREMs) regarding involvement in care and satisfaction with the care provider.
resultWe found the Health Questionnaire to be valid and reliable when used in ordinary clinical practice. There was a high concordance between self-reported adherence to ART in the past seven days and treatment outcome, with 94% of patients who reported optimal adherence having a viral load <50 copies/ml. The main determinants of optimal adherence were heterosexual transmission path, being born in Sweden, being male, not reporting experience of ART side effects and being fully satisfied with care.
conclusionThe nine-item Health Questionnaire can identify patients at risk of treatment failure, those in need of clinical assessment of adverse events and those with impaired physical health.
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