ArticleAmerican journal of Alzheimer's disease and other dementias2016
Pain in Hospice Patients With Dementia: The Informal Caregiver Experience.
Article in American journal of Alzheimer's disease and other dementias, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers, 3 of them syntheses that pooled it.
What it found
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
15 citing papers in PubMed, 3 syntheses or guidelines pooled it, 31 citations in OpenAlex.
- Family Caregiver Challenges in Pain Management for Patients with Advanced Illnesses: A Systematic Review.Journal of palliative medicine · 2022Pooled it
- Interventions to Support Family Caregivers in Pain Management: A Systematic Review.Journal of pain and symptom management · 2020Pooled it
- Perspectives of people with dementia and carers on advance care planning and end-of-life care: A systematic review and thematic synthesis of qualitative studies.Palliative medicine · 2019Pooled it
- The pain identification and communication toolkit: a training program to support family caregivers of persons with ADRD.BMC geriatrics · 2025Trial
- Accessibility, Relevance, and Impact of a Symptom Monitoring Tool for Home Hospice Care: Theory Elaboration and Qualitative Assessment.JMIR human factors · 2024Article
- Adapting an Intervention to Address Barriers to Pain Management in Hospice: Formative Research to Inform EMPOWER-D for Dementia Caregivers.Palliative medicine reports · 2024Article
- Influencing factors of home hospice care needs of the older adults with chronic diseases at the end of life in China: a cross-sectional study.Frontiers in public health · 2024Article
- Evaluation of Federal Policy Changes to the Hospice Benefit and Use of Hospice for Persons With ADRD.JAMA health forum · 2022Observational
- Caregiver-provider communication about pain in persons with dementia.Dementia (London, England) · 2022Article
- Concerns and potential improvements in end-of-life care from the perspectives of older patients and informal caregivers: a scoping review.BMC geriatrics · 2021Article
- Associations Between Hospice Care and Scary Family Caregiver Experiences.Journal of pain and symptom management · 2021Article
- Experiencing improved assessment and control of pain in end-of-life care when using the Abbey Pain Scale systematically.Nursing open · 2020Article
- The challenge of pain identification, assessment, and management in people with dementia: a qualitative study.BJGP open · 2020Article
- Development and Preliminary Evaluation of a Pain Management Manual for Hospice Providers to Support and Educate Family Caregivers.The American journal of hospice & palliative care · 2019Article
- Family caregiving competencies for level one nursing education.Journal of professional nursing : official journal of the American Association of Colleges of NursingArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors at 2 institutions in 1 country.
Funding
Abstract
introductionAt the end of life, patients with dementia often experience high levels of pain due to complex interplay of disease processes and numerous barriers to symptom management. In the hospice setting, informal caregivers play an essential role in pain management. This study describes their experience managing pain in hospice patients with dementia.
methodsWe conducted a qualitative analysis of audio-recorded interviews with informal caregivers of hospice patients with dementia who had chosen pain as the challenge they wanted to work on within a problem-solving therapy intervention.
resultsThe thematic analysis of sessions with 51 caregivers identified 4 themes: difficulty in communicating with patients, lack of consistent guidance from health-care professionals, perceived uncertainty about the etiology of pain, and secondary suffering. DISCUSSION: Our findings indicate the possible need for increased support for caregivers, including educational interventions targeting pain etiology and assessment, and improved communication with health-care professionals.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.