ArticleThe Journal of adolescent health : official publication of the Society for Adolescent Medicine2016
Views of Young People With Chronic Conditions on Transition From Pediatric to Adult Health Services.
Article in The Journal of adolescent health : official publication of the Society for Adolescent Medicine, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers, 2 of them syntheses that pooled it.
What it found
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
17 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- The International Network on Oesophageal Atresia (INoEA) consensus guidelines on the transition of patients with oesophageal atresia-tracheoesophageal fistula.Nature reviews. Gastroenterology & hepatology · 2023Guideline
- A Systematic Review of What Barriers and Facilitators Prevent and Enable Physical Healthcare Services Access for Autistic Adults.Journal of autism and developmental disorders · 2019Pooled it
- Application of Q-methodology in chronic disease research: a scoping review.BMC medical research methodology · 2026Article
- Perspectives of Adolescents and Young Adults With Inflammatory Bowel Disease on a Biopsychosocial Transition Intervention: Qualitative Interview Study.JMIR pediatrics and parenting · 2025Article
- Experiences of health services for adults with cerebral palsy, their support people, and service providers.Developmental medicine and child neurology · 2025Article
- The transition from children to young people living with home mechanical ventilation.International journal of qualitative studies on health and well-being · 2024Article
- Stuck in transit: A qualitative study of the transitional care needs of young people with epilepsy and juvenile idiopathic arthritis.Journal of child health care : for professionals working with children in the hospital and community · 2023Article
- Transition to adult services experienced by young people with cerebral palsy: A cross-sectional study.Developmental medicine and child neurology · 2023Article
- Impending Transition From Pediatric to Adult Health Services: A Qualitative Study of the Experiences of Adolescents With Eating Disorders and Their Caregivers.Frontiers in psychiatry · 2021Article
- Health service use among adults with cerebral palsy: a mixed methods systematic review protocol.BMJ open · 2020Article
- Young Minds: Mental Health and Transitional Care in Adolescent and Young Adult Rheumatology.Open access rheumatology : research and reviews · 2020Review
- Facilitating transition of young people with long-term health conditions from children's to adults' healthcare services - implications of a 5-year research programme.Clinical medicine (London, England) · 2020Article
- Transitional Care in Rheumatology: a Review of the Literature from the Past 5 Years.Current rheumatology reports · 2019Review
- Moving on: Transition experiences of young adults with chronic pain.Canadian journal of pain = Revue canadienne de la douleur · 2019Article
- Transition of pediatric patients with an Auto-inflammatory Disease: an alternative version of theMediterranean journal of rheumatology · 2018Review
- Care for Adults with Spina Bifida: Current State and Future Directions.Topics in spinal cord injury rehabilitation · 2017Review
- "Frontiers in pediatrics · 2016Article
Corrections and comments
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Authors and funding
5 authors.
Funding
Abstract
purposeThis study sought to identify and describe the views of young people with chronic conditions about the transition from pediatric to adult services.
methodsQ methodology was used to identify young people's views on transition. A set of 39 statements about transition was developed from an existing literature review and refined in consultation with local groups of young people. Statements were printed onto cards and a purposive sample of 44 young people with chronic health conditions was recruited, 41 remaining in the study. The young people were asked to sort the statement cards onto a Q-sort grid, according to their opinions from "strongly disagree" to "strongly agree." Factor analysis was used to identify shared points of view (patterns of similarity between individual's Q-sorts).
resultsFour distinct views on transition were identified from young people: (1) "a laid-back view of transition;" (2) "anxiety about transition;" (3) "wanting independence and autonomy during transition;" and (4) "valuing social interaction with family, peers, and professionals to assist transition."
conclusionsSuccessful transition is likely to be influenced by how young people view the process. Discussing and understanding young people's views and preferences about transition should help clinicians and young people develop personalized planning for transition as a whole, and more specifically the point of transfer, leading to effective and efficient engagement with adult care.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.