ArticleBMC public health2016
Survey nonresponse among informal caregivers: effects on the presence and magnitude of associations with caregiver burden and satisfaction.
Article in BMC public health, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 19 papers.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
19 citing papers in PubMed, 35 citations in OpenAlex.
- Understanding Response Rates to Surveys About Family Members' Psychological Symptoms After Patients' Critical Illness.Journal of pain and symptom management · 2017Trial
- Caregiver-reported experience of integrated care for children with special health care needs and its sociodemographic, health- and network-related correlates in Germany: Cross-sectional results from the PART-CHILD cohort.BMC health services research · 2026Article
- The intensity of informal caregiving and its implications for older caregivers: a national survey in Sweden.Scandinavian journal of public health · 2026Article
- Developing and Evaluating an Inpatient Caregiver Support Program: Feasibility, Acceptability, and Perceived Impact.Mayo Clinic proceedings. Innovations, quality & outcomes · 2026Article
- The "healthy dyad" bias in veteran-caregiver dyadic research: a methodological caution.Innovation in aging · 2026Article
- Validation of the Psychometric Properties of the German Version of OBI-Care in Informal Caregivers of Stroke Survivors.Journal of clinical medicine · 2025Article
- Informal care for people with dementia in Europe.The journal of prevention of Alzheimer's disease · 2025Article
- Quantifying the Societal Impacts of Schizophrenia: A Survey of Caregivers.Psychiatric research and clinical practice · 2025Article
- Nonparticipation in a Digital Health Intervention Study Among Older Adults: Uneven Involvement, Biased Outcomes, and the Effect of Weighting.The journals of gerontology. Series A, Biological sciences and medical sciences · 2024Article
- The quality of end of life care for Danish cancer patients who have received specialized palliative: a national survey using the Danish version of VOICES-SF.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2022Article
- The effect of informal caregiving on physical health among non-migrants and Ethnic German Immigrants in Germany: a cohort analysis based on the GSOEP 2000-2018.BMC public health · 2022Article
- What motivates informal carers to be actively involved in research, and what obstacles to involvement do they perceive?Research involvement and engagement · 2021Article
- The Challenges of Measuring Informal Care Time: A Review of the Literature.PharmacoEconomics · 2021Review
- Factors associated with caregiver burden among adult (19-64 years) informal caregivers - An analysis from Dutch Municipal Health Service data.Health & social care in the community · 2020Article
- Novel Risk Factors for Posttraumatic Stress Disorder Symptoms in Family Members of Acute Respiratory Distress Syndrome Survivors.Critical care medicine · 2019Article
- Caregiver Burdens Associated With Treatment-Resistant Schizophrenia: A Quantitative Caregiver Survey of Experiences, Attitudes, and Perceptions.Frontiers in psychiatry · 2019Article
- Caregiving, Employment and Social Isolation: Challenges for Rural Carers in Australia.International journal of environmental research and public health · 2018Article
- The impact of older person's frailty on the care-related quality of life of their informal caregiver over time: results from the TOPICS-MDS project.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2017Article
- Subjective burden among spousal and adult-child informal caregivers of older adults: results from a longitudinal cohort study.BMC geriatrics · 2016Article
Corrections and comments
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Authors and funding
5 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundInformal caregiving is becoming more relevant with current trends such as population ageing. However, little is known about nonconsent and nonresponse bias in caregiving research. We investigated nonconsent and nonresponse bias in a sample of informal caregivers who participated in the LifeLines Cohort Study, and were invited for participation in an additional caregiving study.
methodsWe compared socio-demographic characteristics, caregiver health, caregiving situation, and caregiver outcomes of nonconsent and consent caregivers, and nonresponse and response caregivers, on LifeLines data, by using Chi-square tests, Independent Sample T-tests, and Mann-Whitney tests. Furthermore, we examined the influence of nonconsent and nonresponse on the presence and magnitude of the associations between caregiver characteristics and two commonly used caregiving outcomes (caregiver burden and satisfaction). We conducted multinomial logistic regression analyses, including interaction terms with nonconsent and nonresponse.
resultsWithin a subcohort of 8443 caregivers, aged >18 years, 5095 caregivers (60 %) gave consent for participation in the caregiving study. Within the subgroup of 2002 caregivers who received the questionnaire, 965 (48 %) responded. Caregivers who were highly involved in caregiving (i.e. high time investment, high caregiver burden), gave more commonly consent to participate, and responded more often to the questionnaire. Nonconsent and nonresponse influenced the associations between caregiver characteristics and caregiver burden for only a few characteristics, mainly indicating the level of caregiving involvement (e.g. time investment, caregiving duration). Especially for caregiver burden, these indicators were stronger for consent and response caregivers than for nonconsent and nonresponse caregivers.
conclusionsOur findings are important for caregiving research, as they emphasized that participation might not be evenly distributed among caregivers, and that the possibility of nonconsent and nonresponse bias should be considered.
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