Evidence map›Paper›PMID 27271536›Full record

ArticleJournal of genetic counseling2017

Risk for Patient Harm in Canadian Genetic Counseling Practice: It's Time to Consider Regulation.

Andrea L Shugar, Nada Quercia, Christopher Trevors, Marina M Rabideau, Sohnee Ahmed

Open access · bronzeAbstract read
PubMed Publisher
In one paragraph

Article in Journal of genetic counseling, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers.

0numbers the graph read from it
0cells of the map it votes in
9citing papers in PubMed
0.9field-weighted citation impact, top 19% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

9 citing papers in PubMed, 9 citations in OpenAlex.

  1. Article
  2. Article
  3. Article
  4. Article
  5. Article
  6. Review
  7. Article
  8. The composition and capacity of the clinical genetics workforce in high-income countries: a scoping review.Genetics in medicine : official journal of the American College of Medical Genetics · 2020
    Article
  9. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors at 5 institutions in 3 countries.

Andrea L ShugarDepartment of Genetic Counseling, Hospital for Sick Children, 555 University Avenue, Toronto, ON, M5G 1X8, Canada. andrea.shugar@sickkids.ca.
Nada QuerciaDepartment of Genetic Counseling, Hospital for Sick Children, 555 University Avenue, Toronto, ON, M5G 1X8, Canada.
Christopher TrevorsLifeLabs, Toronto, ON, Canada.
Marina M RabideauGenetics and Genomics, Invitae Inc, San Francisco, CA, USA.
Sohnee AhmedGenetic Counseling, GeneDx, Gaithersburg, MD, USA.
Hospital for Sick Children · CAInvitae (United States) · USResearch Institute for Genetic and Human Therapy · USUniversity of Toronto · CAXLAB (Slovenia) · SI

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

With the increasing awareness of genetic contributions to disease in Canada, the availability of and demand for genetic testing has soared. Genetic counseling is becoming a recognized and rapidly growing (yet unregulated) health profession in Canada. We hypothesized that the potential risk for harm to the public posed by genetic counseling practice in the province of Ontario is sufficient to consider regulation. The Ontario Ministry of Health and Long-Term Care (MOHTLC) sets criteria (both primary and secondary) to identify health professional bodies that meet the threshold for regulation in the province. We developed a survey based on the MOHTLC criteria to determine if genetic counselors meet the primary criteria to be considered for health professions regulation in Ontario. We surveyed 120 Ontario genetic counselors about their clinical practice and perceptions of risk for harm to the public. Results indicate that Ontario genetic counselors are highly independent in their clinical practice and are involved in patient care activities, clinical judgement and decision-making that have the potential to harm patients. In particular, cancer genetic counselors were identified as a cohort that practices with relatively high autonomy and low supervision. In summary, our study indicates that genetic counseling practice in Ontario meets the primary criteria to be considered for regulation.

Indexed as

Patient HarmCounselorsFemaleGenetic CounselingGenetic TestingHumansMaleOntarioRiskSurveys and QuestionnairesCancer geneticsGenetic counselingGenetic counselorGeneticsGenetic testingGenomic medicineGenomicsHealthcareHealth professionsLicensureMedical geneticsRegulation

Identifiers

PMID27271536
OpenAlexW2416726016

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.