Evidence map›Paper›PMID 27268501›Full record

ArticleJournal of pediatric oncology nursing : official journal of the Association of Pediatric Oncology Nurses

Educating Families of Children Newly Diagnosed With Cancer.

Maureen S Haugen, Wendy Landier, Belinda N Mandrell, Jeneane Sullivan, Courtney Schwartz, Micah A Skeens, Marilyn Hockenberry

Registry-linked trialAbstract read
In one paragraph

Article in Journal of pediatric oncology nursing : official journal of the Association of Pediatric Oncology Nurses. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT03752801 (Improving Quality and Consistency in Family Education Prior to First Discharge Following Pediatric Cancer Diagnosis), which is not on this map. Cited by 12 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
12citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT03752801 completednot on this map

Improving Quality and Consistency in Family Education Prior to First Discharge Following Pediatric Cancer Diagnosis

TypeobservationalSponsorThe Hospital for Sick ChildrenRan2018 to 2019Enrolled67ConditionsOncology
3 · Its place in the literature

Who cites it

12 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Interventions to Promote Oral Medication Adherence in the Pediatric Chronic Illness Population: A Systematic Review From the Children's Oncology Group.Journal of pediatric oncology nursing : official journal of the Association of Pediatric Oncology Nurses
    Pooled it
  2. Trial
  3. Trial
  4. Integrating Physical Activity and Family Health Education into Pediatric Oncology Outpatient Care: ATIVAONCO Project.Journal of cancer education : the official journal of the American Association for Cancer Education · 2026
    Article
  5. Article
  6. Article
  7. Article
  8. Article
  9. Article
  10. Exploring Perceptions of Education for Central Venous Catheter Care at Home.Journal of pediatric oncology nursing : official journal of the Association of Pediatric Oncology Nurses
    Article
  11. Patient/Family Education for Newly Diagnosed Pediatric Oncology Patients.Journal of pediatric oncology nursing : official journal of the Association of Pediatric Oncology Nurses
    Article
  12. A Standardized Education Checklist for Parents of Children Newly Diagnosed With Cancer: A Report From the Children's Oncology Group.Journal of pediatric oncology nursing : official journal of the Association of Pediatric Oncology Nurses
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Maureen S Haugen1 Ann & Robert H. Lurie Children's Hospital of Chicago, Chicago, IL, USA.
Wendy Landier2 University of Alabama at Birmingham, Birmingham, Alabama, USA.
Belinda N Mandrell3 St. Jude Children's Research Hospital, Memphis, TN, USA.
Jeneane Sullivan4 Children's Hospital of Philadelphia, Philadelphia, PA, USA.
Courtney Schwartz1 Ann & Robert H. Lurie Children's Hospital of Chicago, Chicago, IL, USA.
Micah A Skeens5 Nationwide Children's Hospital, Cincinnati, OH, USA.
Marilyn Hockenberry6 Duke University School of Nursing, Durham, NC, USA.

Funding

NCTN BIQSFP ANBL1531 (NRT)U10CA180886 · NCI · PUBLIC HEALTH INSTITUTE · PI Douglas S. Hawkins · 2014 to 2026
$390.6M
Patient/Family Education in Pediatric Oncology: State of the Science SymposiumR13CA196165 · NCI · CHILDREN'S HOSP OF PHILADELPHIA · PI HOCKENBERRY, MARILYN J, LANDIER, WENDY · 2015 to 2015
$15k
NCI NIH HHS R13 CA196165NCI NIH HHS U10 CA180886
6 · The paper itself

Abstract

Parents/caregivers require specialized education in order to care for their child with a newly diagnosed cancer. Currently, no evidence-based guidelines exist to identify content essential for inclusion in patient/family education prior to a child's initial discharge home; this study used Delphi methodology to obtain multidisciplinary consensus regarding essential content amongst pediatric oncology experts from the Children's Oncology Group. Three questionnaire rounds were employed to identify essential content, evaluate the importance of the educational topics identified, and gain expert consensus regarding the final ranking of topics identified and whether or not each topic was considered mandatory for inclusion in education for newly diagnosed patients. Disease-specific topics were also identified for patients with leukemia, solid tumors, and central nervous system tumors. The results of this study provide, for the first time, multidisciplinary expert consensus regarding key content essential for inclusion in discharge education for newly diagnosed pediatric oncology patients.

Indexed as

Adaptation, PsychologicalChildChild, PreschoolHealth EducationHumansMaleMedical OncologyNeoplasmsParent-Child RelationsParentsPediatricsPractice Guidelines as TopicSurveys and Questionnaireschildhood cancerChildren’s Oncology GroupDelphi studyeducating families

Identifiers

PMID27268501
PMCPMC5138147

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.