ArticleBMC medical informatics and decision making2016
Post-discharge stroke patients' information needs as input to proposing patient-centred eHealth services.
Article in BMC medical informatics and decision making, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT05185271 (Adopting Dyad-focused Strategy Training to Stroke Survivors and Their Caregivers), which is not on this map. Cited by 24 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Adopting Dyad-focused Strategy Training to Stroke Survivors and Their Caregivers: Intervention Development and a Feasibility Study
Who cites it
24 citing papers in PubMed, 1 synthesis or guideline pooled it.
- The Unmet Needs of Community-Dwelling Stroke Survivors: A Systematic Review of Qualitative Studies.International journal of environmental research and public health · 2021Pooled it
- Implementation of a billable transitional care model for stroke patients: the COMPASS study.BMC health services research · 2019Trial
- Patient satisfaction with hospital-based outpatient rehabilitation after stroke in Sweden and its association with life satisfaction and health-related quality of life: a longitudinal national register study.Journal of rehabilitation medicine · 2026Article
- Virtual Assistant as a Companion for Stroke Survivors post Discharge: Thematic Analysis Highlights Expectations of Human Performance Pose a Key Barrier to Engagement.Cerebrovascular diseases (Basel, Switzerland) · 2026Article
- Stroke Caregiver Needs in a Population-Based Study.Journal of the American Heart Association · 2025Article
- Value-Based Experiences Related to Digital Follow-Up Services Among Critical Care Survivors: An International Qualitative Study.Nursing & health sciences · 2025Article
- Research investigating patient and carer psychoeducation needs regarding post-stroke cognition: a scoping review.BMJ open · 2025Article
- Feasibility, Fidelity and Acceptability of a Person-Centred Care Transition Support Intervention for Stroke Survivors: A Non-Randomised Controlled Study.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Patient medication management, understanding and adherence during the transition from hospital to outpatient care - a qualitative longitudinal study in polymorbid patients with type 2 diabetes.BMC health services research · 2024Article
- Exploring different stroke populations' information needs: a cross-sectional study in England.Archives of public health = Archives belges de sante publique · 2024Article
- Article
- Community-based rehabilitation services implemented by multidisciplinary teams among adults with stroke: a scoping review with a focus on Chinese experience.BMC public health · 2024Article
- Primary Health Care in transitional care of people with stroke.Revista brasileira de enfermagem · 2024Article
- Evaluation of an Electronic Care and Rehabilitation Planning Tool With Stroke Survivors With Aphasia: Usability Study.JMIR human factors · 2023Article
- Experiences and needs of older adults at different stages of cerebral infarction based on trajectory theory-A qualitative study.Nursing open · 2023Article
- Factors that influence the provision of home-based rehabilitation services for people needing rehabilitation: a qualitative evidence synthesis.The Cochrane database of systematic reviews · 2023Review
- Article
- Exploring Stroke Patients' Needs after Discharge from Rehabilitation Centres: Meta-Ethnography.Behavioral sciences (Basel, Switzerland) · 2022Review
- Development of a Digital Tool for People With a Long-Term Condition Using Stroke as a Case Example: Participatory Design Approach.JMIR human factors · 2022Article
- Stroke Survivors' Experiences and Needs during the Decision-making Process Considering Rehabilitation Options: A Pilot Descriptive Study in Japan.Progress in rehabilitation medicine · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundDespite the potential of eHealth services to revolutionize the way healthcare and prevention is provided many applications developed for patients fail to deliver their promise. Therefore, the aim of this study is to use patient journey mapping to explore post-discharge stroke patients' information needs to propose eHealth services that meet their needs throughout their care and rehabilitation processes.
methodsThree focus groups with younger (<65 years) and older (> = 65 years) stroke patients were performed. Content analysis was used to analyse the data. Stroke patients' information needs was explored using patient journey model.
resultsFour main events (discharge from hospital, discharge from rehab clinic, coming home, and clinical encounters) and two phases (at rehab clinic, at home) have been identified in patients' post-discharge journey. The main categories identified in this study indicate that patients not only need to have access to health related information about their care and rehabilitation processes but also practical guidance through healthcare and community services. Patients also have different information needs at different events and during different phases. Potential supportive eHealth services were suggested by the researchers considering different parts of the patients' journeys.
conclusionsPatient journey models and qualitative analysis of patients' information needs are powerful tools that can be used to improve healthcare from a patient perspective. As patients' understanding of their illness changes over time, their need of more flexible support throughout the care and rehabilitation processes increases. To design appropriate eHealth services that meet patients' information needs, it is imperative to understand the current care and rehabilitation processes and identify patients' information needs throughout their journey.
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