Evidence map›Paper›PMID 27265562›Full record

ReviewThe Milbank quarterly2016

Achieving Research Impact Through Co-creation in Community-Based Health Services: Literature Review and Case Study.

Trisha Greenhalgh, Claire Jackson, Sara Shaw, Tina Janamian

2 registry-linked trialsOpen access · hybridAbstract readReview
In one paragraph

Review in The Milbank quarterly, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to 2 registered trials, which are not on this map. Cited by 541 papers, 6 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
541citing papers in PubMed, 6 pooled it
101.8field-weighted citation impact, top 1% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT04267484 unknown statusnot on this mapstarted 2018, after this paper: background citation

Technology to Support Decision Making About Aging at Home (COORDINATEs)

TypeobservationalSponsorCHU de Quebec-Universite LavalRan2018 to 2021Enrolled294ConditionsMemory Problems, Aging, Mild Cognitive Impairment, Shared Decision MakingArmsGPS and travel diary, e-decision support platform
NCT06373588 narecruitingnot on this mapstarted 2024, after this paper: background citation

Co-design and Evaluation of a Patient Navigator Intervention for Migrant Children and Youth with Special Healthcare Needs (CYSHCN) Experiencing Care Transitions (MiNav Trial)

TypeinterventionalSponsorMcGill University Health Centre/Research Institute of the McGill University Health CentreRan2024 to 2027Enrolled324ConditionsPatient NavigationArmsPatient Navigator
3 · Its place in the literature

Who cites it

541 citing papers in PubMed, 6 syntheses or guidelines pooled it, 1,247 citations in OpenAlex.

  1. Pooled it
  2. Model Development on Adherence to Aspirin in Pregnancy: A Co-Produced Qualitative Systematic Review and Meta-Ethnography.Health expectations : an international journal of public participation in health care and health policy · 2026
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  12. Next of kin's experiences of healthcare encounters in the context of severe self-harm: "We know them best".International journal of qualitative studies on health and well-being · 2026
    Article
  13. Navigating sleep apnea in Scandinavia - a journey of contrasts.International journal of qualitative studies on health and well-being · 2026
    Article
  14. Article
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  16. Co-Designing Physical Activity Programmes: A Participatory Research Study With Culturally Diverse Women and Local Government.Health promotion journal of Australia : official journal of Australian Association of Health Promotion Professionals · 2026
    Article
  17. Stakeholder Perspectives on National Implementation of Financial Incentives for Smoking Cessation Before, During and After Pregnancy: A Policy Lab Study.Health expectations : an international journal of public participation in health care and health policy · 2026
    Article
  18. Evaluation of Co-Production in Adolescent Health Research: A Mixed Methods Study From Born in Bradford.Health expectations : an international journal of public participation in health care and health policy · 2026
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  20. Article

481 more citing papers are in PubMed but not listed here.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors at 2 institutions in 2 countries.

Trisha GreenhalghNuffield Department of Primary Care Health Sciences, University of Oxford.
Claire JacksonDiscipline of General Practice, School of Medicine, University of Queensland.
Sara ShawNuffield Department of Primary Care Health Sciences, University of Oxford.
Tina JanamianDiscipline of General Practice, School of Medicine, University of Queensland.
University of Oxford · GBUniversity of Queensland · AU

Funding

Department of Health RP-DG-1213-10003Wellcome Trust
6 · The paper itself

Abstract

policy pointsCo-creation-collaborative knowledge generation by academics working alongside other stakeholders-is an increasingly popular approach to aligning research and service development. It has potential for "moving beyond the ivory towers" to deliver significant societal impact via dynamic, locally adaptive community-academic partnerships. Principles of successful co-creation include a systems perspective, a creative approach to research focused on improving human experience, and careful attention to governance and process. If these principles are not followed, co-creation efforts may fail. CONTEXT: Co-creation-collaborative knowledge generation by academics working alongside other stakeholders-reflects a "Mode 2" relationship (knowledge production rather than knowledge translation) between universities and society. Co-creation is widely believed to increase research impact.

methodsWe undertook a narrative review of different models of co-creation relevant to community-based health services. We contrasted their diverse disciplinary roots and highlighted their common philosophical assumptions, principles of success, and explanations for failures. We applied these to an empirical case study of a community-based research-service partnership led by the Centre of Research Excellence in Quality and Safety in Integrated Primary-Secondary Care at the University of Queensland, Australia.

findingsCo-creation emerged independently in several fields, including business studies ("value co-creation"), design science ("experience-based co-design"), computer science ("technology co-design"), and community development ("participatory research"). These diverse models share some common features, which were also evident in the case study. Key success principles included (1) a systems perspective (assuming emergence, local adaptation, and nonlinearity); (2) the framing of research as a creative enterprise with human experience at its core; and (3) an emphasis on process (the framing of the program, the nature of relationships, and governance and facilitation arrangements, especially the style of leadership and how conflict is managed). In both the literature review and the case study, co-creation "failures" could often be tracked back to abandoning (or never adopting) these principles. All co-creation models made strong claims for significant and sustainable societal impacts as a result of the adaptive and developmental research process; these were illustrated in the case study.

conclusionsCo-creation models have high potential for societal impact but depend critically on key success principles. To capture the nonlinear chains of causation in the co-creation pathway, impact metrics must reflect the dynamic nature and complex interdependencies of health research systems and address processes as well as outcomes.

Indexed as

Community-Based Participatory ResearchCommunity Health ServicesHumansModels, OrganizationalOrganizational Case StudiesQueenslandco-creationhealth research systemsknowledge production

Identifiers

PMID27265562
PMCPMC4911728
OpenAlexW2397469638

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.