ReviewThe Milbank quarterly2016
Achieving Research Impact Through Co-creation in Community-Based Health Services: Literature Review and Case Study.
Review in The Milbank quarterly, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to 2 registered trials, which are not on this map. Cited by 541 papers, 6 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Technology to Support Decision Making About Aging at Home (COORDINATEs)
Co-design and Evaluation of a Patient Navigator Intervention for Migrant Children and Youth with Special Healthcare Needs (CYSHCN) Experiencing Care Transitions (MiNav Trial)
Who cites it
541 citing papers in PubMed, 6 syntheses or guidelines pooled it, 1,247 citations in OpenAlex.
- Cocreation and codesign in maternal health: processes, outcomes and implementation challenges.BMJ quality & safety · 2026Pooled it
- Model Development on Adherence to Aspirin in Pregnancy: A Co-Produced Qualitative Systematic Review and Meta-Ethnography.Health expectations : an international journal of public participation in health care and health policy · 2026Pooled it
- Co-research in the development of AI and digital health tools for cancer management and care: a systematic review.BMC health services research · 2026Pooled it
- How Have Quality Improvement Strategies Been Adopted and How Has Impact Been Assessed in Care Homes for Older People? A Systematic Search and Narrative Review.International journal of older people nursing · 2025Pooled it
- Parents' experiences of family-based physical activity interventions: a systematic review and qualitative evidence synthesis.The international journal of behavioral nutrition and physical activity · 2025Pooled it
- Capacity-building strategies that support correctional and justice health professionals to provide best-evidenced based healthcare for people in prison: a systematic review.International journal for equity in health · 2025Pooled it
- Health-promotion can sustain leisure participation among persons 80 years and older: results from the randomised controlled trial elderly persons in the risk zone.BMC geriatrics · 2026Trial
- Use of Parent- and Patient-Reported Outcome Measures in Pediatric Specialty Clinics: A Pilot Randomized Clinical Trial.JAMA network open · 2026Trial
- Centering peers in design and training for a peer-delivered contingency management program for self-identified harm reduction and treatment goals.Harm reduction journal · 2025Trial
- Integrated Collaborative Care for Youths With Mental Health and Substance Use Challenges: A Randomized Clinical Trial.JAMA network open · 2025Trial
- Effectiveness of digital co-creation platform in remote pulmonary rehabilitation for older adults with chronic obstructive pulmonary disease: a randomized controlled trial.Frontiers in public health · 2025Trial
- Next of kin's experiences of healthcare encounters in the context of severe self-harm: "We know them best".International journal of qualitative studies on health and well-being · 2026Article
- Navigating sleep apnea in Scandinavia - a journey of contrasts.International journal of qualitative studies on health and well-being · 2026Article
- Participatory design partnerships for gender and health in low- and middle-income countries: a scoping review.Global health action · 2026Article
- Engaging Service Users in Co-Designing a Nurse-Led Weight Talk Tool for Low- and Medium-Secure Mental Health Inpatient Settings: A Participatory Intervention Development Study.International journal of mental health nursing · 2026Article
- Co-Designing Physical Activity Programmes: A Participatory Research Study With Culturally Diverse Women and Local Government.Health promotion journal of Australia : official journal of Australian Association of Health Promotion Professionals · 2026Article
- Stakeholder Perspectives on National Implementation of Financial Incentives for Smoking Cessation Before, During and After Pregnancy: A Policy Lab Study.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Evaluation of Co-Production in Adolescent Health Research: A Mixed Methods Study From Born in Bradford.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Black women's decisions about participating in breast cancer screening in the UK: a qualitative study.British journal of cancer · 2026Article
- Operationalizing Patient Experience Data as a System Feedback Asset in Learning Health Systems: Learnings From Model of Care Redesign at Trillium Health Partners.Learning health systems · 2026Article
481 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors at 2 institutions in 2 countries.
Funding
Abstract
policy pointsCo-creation-collaborative knowledge generation by academics working alongside other stakeholders-is an increasingly popular approach to aligning research and service development. It has potential for "moving beyond the ivory towers" to deliver significant societal impact via dynamic, locally adaptive community-academic partnerships. Principles of successful co-creation include a systems perspective, a creative approach to research focused on improving human experience, and careful attention to governance and process. If these principles are not followed, co-creation efforts may fail. CONTEXT: Co-creation-collaborative knowledge generation by academics working alongside other stakeholders-reflects a "Mode 2" relationship (knowledge production rather than knowledge translation) between universities and society. Co-creation is widely believed to increase research impact.
methodsWe undertook a narrative review of different models of co-creation relevant to community-based health services. We contrasted their diverse disciplinary roots and highlighted their common philosophical assumptions, principles of success, and explanations for failures. We applied these to an empirical case study of a community-based research-service partnership led by the Centre of Research Excellence in Quality and Safety in Integrated Primary-Secondary Care at the University of Queensland, Australia.
findingsCo-creation emerged independently in several fields, including business studies ("value co-creation"), design science ("experience-based co-design"), computer science ("technology co-design"), and community development ("participatory research"). These diverse models share some common features, which were also evident in the case study. Key success principles included (1) a systems perspective (assuming emergence, local adaptation, and nonlinearity); (2) the framing of research as a creative enterprise with human experience at its core; and (3) an emphasis on process (the framing of the program, the nature of relationships, and governance and facilitation arrangements, especially the style of leadership and how conflict is managed). In both the literature review and the case study, co-creation "failures" could often be tracked back to abandoning (or never adopting) these principles. All co-creation models made strong claims for significant and sustainable societal impacts as a result of the adaptive and developmental research process; these were illustrated in the case study.
conclusionsCo-creation models have high potential for societal impact but depend critically on key success principles. To capture the nonlinear chains of causation in the co-creation pathway, impact metrics must reflect the dynamic nature and complex interdependencies of health research systems and address processes as well as outcomes.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.