ArticleResearch in social & administrative pharmacy : RSAP
Care coordination, medical complexity, and unmet need for prescription medications among children with special health care needs.
Article in Research in social & administrative pharmacy : RSAP. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.
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Who cites it
10 citing papers in PubMed.
- Improving Lifelong Comprehensive Care Coordination in Nephropathic Cystinosis: Multidisciplinary Perspectives.Kidney international reports · 2026Review
- Parental perspectives on family-centered care in pediatric neurology: An explanatory sequential mixed-methods study.Developmental medicine and child neurology · 2025Article
- Development of a medical chart extraction tool to identify children with medical complexity in the Maritime Provinces of Canada.Paediatrics & child health · 2025Article
- Bridging the gaps in pediatric complex healthcare: the case for home nursing care among children with medical complexity.BMC health services research · 2024Article
- Home-Based Care for Children with Serious Illness: Ecological Framework and Research Implications.Children (Basel, Switzerland) · 2022Article
- Children With Medical Complexity in the Canadian Maritimes: Protocol for a Mixed Methods Study.JMIR research protocols · 2022Article
- Most Children With Medical Complexity Do Not Receive Care in Well-Functioning Health Care Systems.Hospital pediatrics · 2021Article
- Unmet Need for Medical Care: The Role of Mental Health Status.Community mental health journal · 2021Article
- Creating a Pharmacotherapy Collaborative Practice Network to Manage Medications for Children and Youth: A Population Health Perspective.Children (Basel, Switzerland) · 2019Article
- Changes in care coordination and health insurance in the population of US children with muscular dystrophy, 2005-2006 and 2009-2010.International journal of care coordination · 2018Article
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Abstract
backgroundChildren with special health care needs (CSHCN) have multiple unmet health care needs including that of prescription medications.
objectivesThe objectives of this study were twofold: 1) to quantify and compare unmet needs for prescription medications for subgroups of CSHCN without and with medical complexity (CMC)-those who have multiple, chronic, and complex medical conditions associated with severe functional limitations and high utilization of health care resources, and 2) to describe its association with receipt of effective care coordination services and level of medical complexity.
methodA secondary data analysis of the 2009/2010 National Survey of CSHCN, a nationally representative telephone survey of parents of CSHCN, was conducted. Logistic regression models were constructed to determine associations between unmet need for prescription medications and medical complexity and care coordination for families of CSHCN, while controlling for demographic variables such as race, insurance, education level, and household income. Analyses accounted for the complex survey design and sampling weights.
resultsCMC represented about 3% of CSHCN. CMC parents reported significantly more unmet need for prescription medications and care coordination (4%, 68%), compared to Non-CMC parents (2%, 40%). Greater unmet need for prescription medications was associated with unmet care coordination (adjusted OR 3.81; 95% CI: 2.70-5.40) and greater medical complexity (adjusted OR 2.01; 95% CI: 1.00-4.03).
conclusionsTraditional care coordination is primarily facilitated by nurses and nurse practitioners with little formal training in medication management. However, pharmacists are rarely part of the CSHCN care coordination model. As care delivery models for these children evolve, and given the complexity of and numerous transitions of care for these patients, pharmacists can play an integral role to improve unmet needs for prescription medications.
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