ArticleJournal of cancer education : the official journal of the American Association for Cancer Education2017
"Others Like Me". An Approach to the Use of the Internet and Social Networks in Adolescents and Young Adults Diagnosed with Cancer.
Article in Journal of cancer education : the official journal of the American Association for Cancer Education, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers.
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Who cites it
13 citing papers in PubMed.
- Conceptualization of Digital Platforms Within Cancer Communication: A Review of Barriers and Drivers of Online Tools to Empower Children and Adolescents with Cancer to Understand Their Disease.European journal of investigation in health, psychology and education · 2025Review
- The Role of Online Support, Caregiving, and Gender in Preventative Cancer Genetic Testing Participation: Cross-Sectional Study From a National Study.JMIR cancer · 2025Article
- Fear, coping and support- from the perspective of children aged 10-17-year old having acute lymphoblastic leukemia.International journal of qualitative studies on health and well-being · 2024Article
- Children and young people's preferences and needs when using health technology to self-manage a long-term condition: a scoping review.Archives of disease in childhood · 2024Article
- Evaluating the Readability of Online Blood Cancer Education Materials Across Different Readability Measures.Cureus · 2024Article
- Adolescents and young adults with oncohematological disease: use of social networks, impact of SARS-COV-2, and psychosocial well-being.Frontiers in psychiatry · 2023Article
- Online Platform to Assess Complex Social Relationships and Patient-Reported Outcomes Among Adolescent and Young Adult Cancer Survivors.JCO clinical cancer informatics · 2021Article
- Clinical, social, and psycho-oncological needs of adolescents and young adults (AYA) versus older patients following hematopoietic stem cell transplantation.Journal of cancer research and clinical oncology · 2021Article
- Children and young people's concerns and needs relating to their use of health technology to self-manage long-term conditions: a scoping review.Archives of disease in childhood · 2020Article
- Psychosocial issues for adolescent and young adult cancer patients in a global context: A forward-looking approach.Pediatric blood & cancer · 2019Review
- Exploring the Most Visible German Websites on Melanoma Immunotherapy: A Web-Based Analysis.JMIR cancer · 2018Article
- Online information and support needs of young people with cancer: a participatory action research study.Adolescent health, medicine and therapeutics · 2018Article
- Loneliness predicts suicidal ideation and anxiety symptoms in long-term childhood cancer survivors.International journal of clinical and health psychology : IJCHPArticle
Corrections and comments
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Authors and funding
2 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
The purpose of this study is to improve comprehension about how adolescents and young adults (AYA) diagnosed with cancer use the Internet and social networks to seek information about their illness and to establish relationships between them. A group of 20 AYA patients and survivors of cancer (ages 14 to 29) were interviewed from a qualitative approach. Most of the respondents (N = 16) sought information about their disease on the Internet. They looked for information using search engines (mainly Google) and general concepts as their own cancer name. In general, they did not share the information obtained with their parents or professional healthcare providers. The interviewees think that the information is difficult to understand because of jargon and that it is not aimed at a young audience. All (N = 20) have presence in social networking sites. AYAs with cancer are starting to create content themselves: three started a blog in order to explain their experience to others like them. The study shows that is necessary to increase efforts on adapting content to these age groups in order to help them learn more about their own disease. This may contribute to increment their adherence to treatment and to maintain surveillance of potential consequences and health problems post-treatment.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.