Evidence map›Paper›PMID 27237410›Full record

ArticlePalliative & supportive care2017

Patient and caregiver characteristics related to completion of advance directives in terminally ill patients.

Grace W K Ho, Lauren Skaggs, Gayane Yenokyan, Anela Kellogg, Julie A Johnson, Mei Ching Lee, Katherine Heinze, Mark T Hughes, Daniel P Sulmasy, Joan Kub and 5 more

Abstract read
In one paragraph

Article in Palliative & supportive care, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers.

0numbers the graph read from it
0cells of the map it votes in
14citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

14 citing papers in PubMed.

  1. Trial
  2. Advanced cancer patients' knowledge and opinions regarding the French law on advance directives: a multicenter cross-sectional study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026
    Article
  3. Article
  4. Article
  5. Article
  6. Article
  7. Article
  8. Review
  9. Article
  10. Advance Directives and Factors Associated with the Completion in Patients with Heart Failure.International journal of environmental research and public health · 2021
    Article
  11. Article
  12. Article
  13. Article
  14. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

15 authors.

Grace W K HoJohns Hopkins University School of Nursing,Baltimore,Maryland.
Lauren SkaggsJohns Hopkins University School of Nursing,Baltimore,Maryland.
Gayane YenokyanJohns Hopkins Bloomberg School of Public Health,Baltimore,Maryland.
Anela KelloggJohns Hopkins University School of Nursing,Baltimore,Maryland.
Julie A JohnsonCenter for Research Informatics,The University of Chicago,Chicago,Illinois.
Mei Ching LeeUniversity of Maryland School of Nursing,Baltimore,Maryland.
Katherine HeinzeJohns Hopkins University School of Nursing,Baltimore,Maryland.
Mark T HughesJohns Hopkins University School of Medicine and Berman Institute of Bioethics,Baltimore,Maryland.
Daniel P SulmasyDepartment of Medicine,the Divinity School,and the MacLean Center for Clinical Medical Ethics,The University of Chicago,Chicago,Illinois.
Joan KubJohns Hopkins University School of Nursing,Baltimore,Maryland.
Peter B TerryJohns Hopkins Hospital Department of Medicine,Baltimore,Maryland.
Alan B AstrowMaimonides Cancer Center,Brooklyn,New York.
Jing ZhengSun Yat-sen University School of Nursing,Guangdong,China.
Lisa Soleymani LehmannBrigham and Women's Hospital Department of Medicine and Harvard Medical School,Boston,Massachusetts.
Marie T NolanJohns Hopkins University School of Nursing,Baltimore,Maryland.

Funding

Trial of Ascertaining Individual Preferences for Loved Ones' Role in End-of-lifeR01NR010733 · NINR · JOHNS HOPKINS UNIVERSITY · PI NOLAN, MARIE T. · 2009 to 2013
$3.5M
NINR NIH HHS R01 NR010733
6 · The paper itself

Abstract

objectiveThere is a growing body of literature describing the characteristics of patients who plan for the end of life, but little research has examined how caregivers influence patients' advance care planning (ACP). The purpose of this study was to examine how patient and caregiver characteristics are associated with advance directive (AD) completion among patients diagnosed with a terminal illness. We defined AD completion as having completed a living will and/or identified a healthcare power of attorney.

methodA convenience sample of 206 caregiver-patient dyads was included in the study. All patients were diagnosed with an advanced life-limiting illness. Trained research nurses administered surveys to collect information on patient and caregiver demographics (i.e., age, sex, race, education, marital status, and individual annual income) and patients' diagnoses and completion of AD. Multivariate logistic regression was employed to model predictors for patients' AD completion.

resultsOver half of our patient sample (59%) completed an AD. Patients who were older, diagnosed with amyotrophic lateral sclerosis, and with a caregiver who was Caucasian or declined to report an income level were more likely to have an AD in place. SIGNIFICANCE OF

resultsOur results suggest that both patient and caregiver characteristics may influence patients' decisions to complete an AD at the end of life. When possible, caregivers should be included in advance care planning for patients who are terminally ill.

Indexed as

Advance Care PlanningAdvance DirectivesAgedAged, 80 and overAmyotrophic Lateral SclerosisCaregiversCross-Sectional StudiesFemaleGastrointestinal NeoplasmsHeart FailureHumansMaleMiddle AgedPancreatic NeoplasmsPatientsProspective StudiesAdvance care planningAdvance directivesCaregiverTerminally ill patients

Identifiers

PMID27237410
PMCPMC8976443

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.