ArticleGlobalization and health2016
Achieving optimal cancer outcomes in East Africa through multidisciplinary partnership: a case study of the Kenyan National Retinoblastoma Strategy group.
Article in Globalization and health, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 19 papers, 2 of them syntheses that pooled it.
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Who cites it
19 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Implementation factors of non-communicable disease policies and programmes for children and youth in low-income and middle-income countries: a systematic review.BMJ paediatrics open · 2024Pooled it
- Ethical, social, and cultural issues related to clinical genetic testing and counseling in low- and middle-income countries: a systematic review.Genetics in medicine : official journal of the American College of Medical Genetics · 2021Pooled it
- A Machine Learning Pipeline to Analyze Global Sentiment and Factors Influencing Retinoblastoma Treatment Hesitancy: Observational Infodemiology Study.Journal of medical Internet research · 2026Article
- Article
- Development and preliminary evaluation of a genetics education booklet for retinoblastoma.Journal of genetic counseling · 2025Article
- Advancing Leukemia Diagnosis and Treatment: WHO-Supported Laboratory Innovations in Africa- A Narrative Review.Blood and lymphatic cancer : targets and therapy · 2025Review
- Worldwide Burden of Retinoblastoma from 1990 to 2021.Ophthalmic research · 2024Article
- Health Services Needs Assessment for Retinoblastoma in Ethiopia.JCO global oncology · 2023Article
- Public-private partnership to rapidly strengthen and scale COVID-19 response in Western Kenya.Frontiers in public health · 2022Article
- Characterization of international partnerships in global retinoblastoma care and research: A network analysis.PLOS global public health · 2021Article
- Development of a pediatric ophthalmology academic partnership between Canada and Ethiopia: a situational analysis.BMC medical education · 2020Article
- Lessons for Patient Engagement in Research in Low- and Middle-Income Countries.Ophthalmology and therapy · 2020Article
- Global Retinoblastoma Presentation and Analysis by National Income Level.JAMA oncology · 2020Article
- Public-private partnerships in practice: collaborating to improve health finance policy in Ghana and Kenya.Health policy and planning · 2018Article
- "Where Does it Come from?" Experiences Among Survivors and Parents of Children with Retinoblastoma in Kenya.Journal of genetic counseling · 2018Article
- The Interdisciplinary Diagnosis and Treatment of Intraocular Tumors.Deutsches Arzteblatt international · 2018Review
- Design and Implementation of the Retinoblastoma Collaborative Laboratory.Ocular oncology and pathology · 2017Article
- Health partnership research and the assessment of effectiveness.Globalization and health · 2016Article
- Eye Health Integration in Southern and Eastern Africa: A Scoping Review.Middle East African journal of ophthalmologyArticle
Corrections and comments
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Authors and funding
8 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundStrategic, interdisciplinary partnerships are essential to addressing the complex drivers of health inequities that result in survival disparities worldwide. Take for example the aggressive early childhood eye cancer retinoblastoma, where survival reaches 97 % in resource-rich countries, but is as low 30 % in some resource-limited nations, where 92 % of the burden lies. This suggests a need for a multifaceted approach to achieve a tangible and sustainable increase in survival.
methodsWe assembled the history the Kenyan National Retinoblastoma Strategy (KNRbS), using information documented in NGO reports, grant applications, news articles, meeting agendas and summaries. We evaluated the KNRbS using the principles found in the guide for transboundary research partnerships developed by the Swiss Commission for Research Partnerships with Developing Countries.
resultsA nationally co-ordinated approach drawing input and expertise from multiple disciplines and sectors presented opportunities to optimise cure of children with retinoblastoma. Annual meetings were key to achieving the over 40 major outputs of the group's efforts, related to Awareness, Medical Care, Family Support and Resource Mobilization. Three features were found to be critical to the KNRbS success: multidisciplinarity, consistency and flexibility.
conclusionThe KNRbS has achieved a number of key outputs with limited financial investment. As a partnership, the KNRbS meets most of the criteria identified for success. Challenges remain in securing the long-term sustainability of its achievements. Elements of the Kenyan National Retinoblastoma Strategy may be useful to other developing countries struggling with limited survival of retinoblastoma and other cancers or rare diseases.
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