Evidence map›Paper›PMID 27211035›Full record

ArticleJournal of genetic counseling2016

DECIDE: a Decision Support Tool to Facilitate Parents' Choices Regarding Genome-Wide Sequencing.

Patricia Birch, S Adam, N Bansback, R R Coe, J Hicklin, A Lehman, K C Li, J M Friedman

Open access · bronzeAbstract read
PubMed Publisher
In one paragraph

Article in Journal of genetic counseling, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 30 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
30citing papers in PubMed, 2 pooled it
5.1field-weighted citation impact, top 5% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

30 citing papers in PubMed, 2 syntheses or guidelines pooled it, 50 citations in OpenAlex.

  1. Pooled it
  2. Pooled it
  3. Trial
  4. The role of digital tools in the delivery of genomic medicine: enhancing patient-centered care.Genetics in medicine : official journal of the American College of Medical Genetics · 2021
    Trial
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  9. Review
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  18. Systematic Development of Patient Decision Aids: An Update from the IPDAS Collaboration.Medical decision making : an international journal of the Society for Medical Decision Making · 2021
    Article
  19. Article
  20. The composition and capacity of the clinical genetics workforce in high-income countries: a scoping review.Genetics in medicine : official journal of the American College of Medical Genetics · 2020
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors at 2 institutions in 1 country.

Patricia BirchDepartment of Medical Genetics, Children's and Women's Hospital, University of British Columbia, Box 153, 4500 Oak Street, Vancouver, BC, V6H 3N1, Canada. Patricia.Birch@ubc.ca.
S AdamDepartment of Medical Genetics, Children's and Women's Hospital, University of British Columbia, Box 153, 4500 Oak Street, Vancouver, BC, V6H 3N1, Canada.
N BansbackSchool of Population and Public Health, University of British Columbia, Vancouver, BC, Canada.
R R CoeDepartment of Medical Genetics, Children's and Women's Hospital, University of British Columbia, Box 153, 4500 Oak Street, Vancouver, BC, V6H 3N1, Canada.
J HicklinSchool of Population and Public Health, University of British Columbia, Vancouver, BC, Canada.
A LehmanDepartment of Medical Genetics, Children's and Women's Hospital, University of British Columbia, Box 153, 4500 Oak Street, Vancouver, BC, V6H 3N1, Canada.
K C LiDepartment of Medical Genetics, Children's and Women's Hospital, University of British Columbia, Box 153, 4500 Oak Street, Vancouver, BC, V6H 3N1, Canada.
J M FriedmanDepartment of Medical Genetics, Children's and Women's Hospital, University of British Columbia, Box 153, 4500 Oak Street, Vancouver, BC, V6H 3N1, Canada.
University of British Columbia · CABC Children's Hospital · CA

Funding

Canadian Institutes for Health Research
6 · The paper itself

Abstract

We describe the rationale, development, and usability testing for an integrated e-learning tool and decision aid for parents facing decisions about genome-wide sequencing (GWS) for their children with a suspected genetic condition. The online tool, DECIDE, is designed to provide decision-support and to promote high quality decisions about undergoing GWS with or without return of optional incidental finding results. DECIDE works by integrating educational material with decision aids. Users may tailor their learning by controlling both the amount of information and its format - text and diagrams and/or short videos. The decision aid guides users to weigh the importance of various relevant factors in their own lives and circumstances. After considering the pros and cons of GWS and return of incidental findings, DECIDE summarizes the user's responses and apparent preferred choices. In a usability study of 16 parents who had already chosen GWS after conventional genetic counselling, all participants found DECIDE to be helpful. Many would have been satisfied to use it alone to guide their GWS decisions, but most would prefer to have the option of consulting a health care professional as well to aid their decision. Further testing is necessary to establish the effectiveness of using DECIDE as an adjunct to or instead of conventional pre-test genetic counselling for clinical genome-wide sequencing.

Indexed as

Decision Support TechniquesGenetic TestingSequence Analysis, DNASoftwareAdolescentChildChild, PreschoolFemaleGenetic CounselingHumansMaleParentsReferral and ConsultationDecision aidDecision supportE-counsellingGenomic and genetic sequencingGenomic counsellingUsability study

Identifiers

PMID27211035
OpenAlexW2395375924

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.