Trial reportNephrology, dialysis, transplantation : official publication of the European Dialysis and Transplant Association - European Renal Association2017
Determining the research priorities for patients with chronic kidney disease not on dialysis.
Trial report in Nephrology, dialysis, transplantation : official publication of the European Dialysis and Transplant Association - European Renal Association, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 71 papers, 3 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
71 citing papers in PubMed, 3 syntheses or guidelines pooled it, 95 citations in OpenAlex.
- Patient-reported outcome measures for fatigue in patients with chronic kidney disease: a systematic review.BMJ open · 2025Pooled it
- Priorities of patients, caregivers and health-care professionals for health research - A systematic review.Health expectations : an international journal of public participation in health care and health policy · 2020Pooled it
- Lifestyle behaviour change for preventing the progression of chronic kidney disease: a systematic review.BMJ open · 2019Pooled it
- Impact of superimposed nephrological care to guidelines-directed management by primary care physicians of patients with stable chronic kidney disease: a randomized controlled trial.BMC nephrology · 2020Trial
- Improving proteinuria screening with mailed smartphone urinalysis testing in previously unscreened patients with hypertension: a randomized controlled trial.BMC nephrology · 2019Trial
- Priorities for Evidence-Based CKD Guidance Using Delphi Methods.Kidney international reports · 2026Article
- Randomized clinical trial of the KH4L self-management program.Clinical kidney journal · 2026Article
- Factors influencing the development and implementation of a prehabilitation program for kidney transplant candidates: A mixed-methods contextual analysis.International journal of nursing studies advances · 2026Article
- Canadian healthcare provider perspectives and practices in the provision of sexual health support for people with chronic kidney disease: a mixed methods study.BMC nephrology · 2026Article
- My Heart and CKD: Pathway to Implementing a Decision Aid for Patients With CKD and Coronary Artery Disease.Canadian journal of kidney health and disease · 2026Article
- Human-Centred Design & Development of aCJC open · 2025Article
- Implementation and Evaluation of a Patient-Focused eHealth Intervention, My Kidneys My Health, in Primary Care and General Nephrology Clinics: Multimethods Study.Journal of medical Internet research · 2025Article
- Low Energy Diets for Obesity and CKD (SLOW-CKD Randomized Feasibility Study).Kidney international reports · 2025Article
- Identification and Prioritization of Canadian Society of Nephrology Clinical Practice Guideline Topics.Kidney international reports · 2025Article
- Sexual bother and sexual activity before and after kidney transplantation.American journal of transplantation : official journal of the American Society of Transplantation and the American Society of Transplant Surgeons · 2025Article
- Improving Transparency and Relevance of the Clinical Practice Guidelines in Nephrology.Kidney international reports · 2025Article
- Article
- Identifying research priorities for pregnant South Asian immigrants in Canada: A James Lind Alliance approach.PloS one · 2025Article
- Patient-reported outcome measures for life participation in patients with chronic kidney disease: a systematic review.Clinical kidney journal · 2025Article
- Adapting a Self-Management Tool (My Kidneys My Health) to Meet the Needs of Diverse Canadian Populations: Program Report.Canadian journal of kidney health and disease · 2025Article
11 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
18 authors at 11 institutions in 3 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundThe importance of engaging key stakeholders, and patients in particular, in determining research priorities has been recognized. We sought to identify the top 10 research priorities for patients with non-dialysis chronic kidney disease (CKD), their caregivers, and the clinicians and policy-makers involved in their care.
methodsWe used the four-step James Lind Alliance process to establish the top 10 research priorities. A national survey of patients with non-dialysis CKD (estimated glomerular filtration rate <45 mL/min/1.73 m 2 ), their caregivers, and the clinicians and policy-makers involved in their care was conducted to identify research uncertainties. A Steering Group of patients, caregivers, clinicians and researchers combined and reduced these uncertainties to 30 through a series of iterations. Finally, a workshop with participants from across Canada (12 patients, 6 caregivers, 3 physicians, 2 nurses, 1 pharmacist and 1 policy-maker) was held to determine the top 10 research priorities, using a nominal group technique.
resultsOverall, 439 individuals responded to the survey and identified 1811 uncertainties, from which the steering group determined the top 30 uncertainties to be considered at the workshop. The top 10 research uncertainties prioritized at the workshop included questions about treatments to prevent progression of kidney disease (including diet) and to treat symptoms of CKD, provider- and patient-targeted strategies for managing CKD, the impact of lifestyle on disease progression, harmful effects of medications on disease progression, optimal strategies for treatment of cardiovascular disease in CKD and for early identification of kidney disease, and strategies for equitable access to care for patients with CKD.
conclusionsWe identified the top 10 research priorities for patients with CKD that can be used to guide researchers, as well as inform funders of health-care research.
Indexed as
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.