ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2016
Burden and happiness in head and neck cancer carers: the role of supportive care needs.
Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 23 papers, 3 of them syntheses that pooled it.
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Who cites it
23 citing papers in PubMed, 3 syntheses or guidelines pooled it, 44 citations in OpenAlex.
- Caregiver burden, anxiety, and quality-of-life among informal caregivers of patient with head and neck cancer: a systematic review.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Pooled it
- Health and Well-Being Needs Among Head and Neck Cancer Caregivers - A Systematic Review.The Annals of otology, rhinology, and laryngology · 2023Pooled it
- Patient and carer experience of nutrition care throughout treatment for head and neck cancer: a systematic qualitative review and thematic synthesis.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2020Pooled it
- Caregiver Burden in Head and Neck Cancer: The Combined Impact of Clinical Complexity and Psychological Distress.Journal of clinical medicine · 2026Article
- Caregiving needs of patients with terminal cancer and their families: a field study of family meetings.BMC palliative care · 2026Article
- Article
- AppER: Design and Validation of a Mobile Application for Caregivers of Patients with Duchenne Muscular Dystrophy and Their Families in Spain and Latin America.Muscles (Basel, Switzerland) · 2025Article
- Stress, Employment Changes, and Psychological Distress Among Caregivers of Patients With Head and Neck Cancer.JAMA otolaryngology-- head & neck surgery · 2025Observational
- "It's a delicate dance": How informal caregivers experience the role and responsibilities of supporting someone living with a lower-grade glioma.Neuro-oncology practice · 2025Article
- The CarerQol Instrument: A Systematic Review, Validity Analysis, and Generalization Reliability Study.Journal of clinical medicine · 2025Review
- Predictors of overload in parents of children with neuromuscular diseases.Frontiers in neurology · 2024Article
- Article
- Unmet supportive care needs among informal caregivers of patients with head and neck cancer in the first 2 years after diagnosis and treatment: a prospective cohort study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2023Article
- Caregiver Burden, Psychological Distress and Quality of Life among Informal Caregivers of Patients with Head and Neck Cancer: A Longitudinal Study.International journal of environmental research and public health · 2022Article
- A qualitative comparison of the nutrition care experiences of carers supporting patients with head and neck cancer throughout surgery and radiation treatment and survivorship.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2022Article
- Exploring the views of patients' and their family about patient-initiated follow-up in head and neck cancer: A mixed methods study.European journal of cancer care · 2022Article
- The Role of Associations in Reducing the Emotional and Financial Impact on Parents Caring for Children with Duchenne Muscular Dystrophy: A Cross-Cultural Study.International journal of environmental research and public health · 2022Article
- The quality of life of regional and remote cancer caregivers in Australia.European journal of cancer care · 2022Article
- Disparity of perception of quality of life between head and neck cancer patients and caregivers.BMC cancer · 2021Article
- Informal caregiving for adults, loneliness and social isolation: a study protocol for a systematic review.BMJ open · 2021Article
Corrections and comments
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Authors and funding
8 authors at 5 institutions in 3 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeOur study aimed to investigate the relationship between unmet supportive care needs and carer burden and happiness, in head and neck cancer (HNC).
methodsTwo hundred eighty-five HNC informal carers were sent a postal questionnaire between January and June 2014, which included the supportive care needs survey for partners and caregivers of cancer survivors (SCNS-P&C) and the CarerQol, which assesses burden and happiness. Multiple regression analysis was conducted to examine the association of (i) carer characteristics, (ii) carer situation, and (iii) unmet supportive care needs, with carer burden and happiness
resultsOne hundred ninety-seven carers completed the questionnaire (response rate = 69 %), 180 of whom were included in the analysis. The majority were female (76 %), not in paid employment (68 %) and caring for their spouse (67 %). On average, carers reported relatively low levels of burden and relatively high levels of happiness. Carer factors explained 42 % of variance in levels of burden and 24 % of variance in levels of happiness. Healthcare service needs were associated with carer burden (β = .28, p = .04), while psychological needs (β = -.38, p = .028), health care service needs (β = -.30, p = .049), information needs (β = .29, p = .028), carer comorbidity (β = -.18, p = .030), and gender (β = -.16, p = .045) were associated with happiness.
conclusionsOur results indicate that different aspects of carer characteristics and unmet needs are associated with carer burden and happiness. Efforts directed at reducing unmet healthcare service needs in particular are merited given their associations with both aspects of carer quality of life.
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