ArticleInternational journal of qualitative studies on health and well-being2016
Shared decision-making in mental health care-A user perspective on decisional needs in community-based services.
Article in International journal of qualitative studies on health and well-being, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 22 papers, 3 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
22 citing papers in PubMed, 3 syntheses or guidelines pooled it.
- A meta-ethnography of shared decision-making in mental health care from the perspective of staff and service users.BMC health services research · 2024Pooled it
- Pooled it
- Supporting shared decision making for older people with multiple health and social care needs: a realist synthesis.BMC geriatrics · 2018Pooled it
- Case Study Analysis of a Decision Coaching Intervention for Young Adults with Early Psychosis.Community mental health journal · 2025Trial
- Experiences of Dissensus Between People Living With Mental Illness and Their Care Providers.Cureus · 2026Article
- The Relationship Between Staff and Patient Interactions and Patients' Perceptions of Good Quality of Care in Psychiatric Outpatient Services-A Structural Equation Model.Scandinavian journal of caring sciences · 2025Article
- Care Plan Templates in Adult Community Mental Health Teams in England and Wales: An Evaluation.Nursing reports (Pavia, Italy) · 2024Article
- Experiencing (Shared) Decision Making: Results from a Qualitative Study of People with Mental Illness and Their Family Members.Healthcare (Basel, Switzerland) · 2023Article
- Epistemic citizenship under structural siege: a meta-analysis drawing on 544 voices of service user experiences in Nordic mental health services.Frontiers in psychiatry · 2023Review
- Effectiveness of Shared Decision-making Training Programs for Health Care Professionals Using Reflexivity Strategies: Secondary Analysis of a Systematic Review.JMIR medical education · 2022Review
- Reframing Patient Experience Approaches and Methods to Achieve Patient-Centeredness in Healthcare: Scoping Review.International journal of environmental research and public health · 2022Article
- Treatment decision-making needs among emerging adults with early psychosis.Early intervention in psychiatry · 2022Article
- Co-creating a process of user involvement and shared decision-making in coordinated care planning with users and caregivers in social services.International journal of qualitative studies on health and well-being · 2020Article
- A day in the life of people with severe mental illness living in supported housing.BMC psychiatry · 2020Article
- Shared decision making for adults with severe mental illness: A concept analysis.Japan journal of nursing science : JJNS · 2020Review
- Discrepancy in Ratings of Shared Decision Making Between Patients and Health Professionals: A Cross Sectional Study in Mental Health Care.Frontiers in psychology · 2020Article
- Psychiatric service staff perceptions of implementing a shared decision-making tool: a process evaluation study.International journal of qualitative studies on health and well-being · 2018Article
- Development of a Strategic Tool for Shared Decision-Making in the Use of Antidepressants among Patients with Major Depressive Disorder: A Focus Group Study.International journal of environmental research and public health · 2018Article
- Supporting Shared Decision-making for Children's Complex Behavioral Problems: Development and User Testing of an Option Grid™ Decision Aid.Community mental health journal · 2018Article
- Perspectives on health and well-being in social sciences.International journal of qualitative studies on health and well-being · 2016Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundShared decision-making (SDM) is an emergent research topic in the field of mental health care and is considered to be a central component of a recovery-oriented system. Despite the evidence suggesting the benefits of this change in the power relationship between users and practitioners, the method has not been widely implemented in clinical practice.
objectiveThe objective of this study was to investigate decisional and information needs among users with mental illness as a prerequisite for the development of a decision support tool aimed at supporting SDM in community-based mental health services in Sweden.
methodsThree semi-structured focus group interviews were conducted with 22 adult users with mental illness. The transcribed interviews were analyzed using a directed content analysis. This method was used to develop an in-depth understanding of the decisional process as well as to validate and conceptually extend Elwyn et al.'s model of SDM.
resultsThe model Elwyn et al. have created for SDM in somatic care fits well for mental health services, both in terms of process and content. However, the results also suggest an extension of the model because decisions related to mental illness are often complex and involve a number of life domains. Issues related to social context and individual recovery point to the need for a preparation phase focused on establishing cooperation and mutual understanding as well as a clear follow-up phase that allows for feedback and adjustments to the decision-making process. CONCLUSIONS AND IMPLICATIONS FOR PRACTICE: The current study contributes to a deeper understanding of decisional and information needs among users of community-based mental health services that may reduce barriers to participation in decision-making. The results also shed light on attitudinal, relationship-based, and cognitive factors that are important to consider in adapting SDM in the mental health system.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.