Evidence map›Paper›PMID 27165149›Full record

SynthesisQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2016

The health-related quality of life of Indigenous populations: a global systematic review.

Blake Angell, Janani Muhunthan, Anne-Marie Eades, Joan Cunningham, Gail Garvey, Alan Cass, Kirsten Howard, Julie Ratcliffe, Sandra Eades, Stephen Jan

Abstract readSystematic Review
PubMed Publisher
In one paragraph

Synthesis in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 41 papers, 8 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
41citing papers in PubMed, 8 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

41 citing papers in PubMed, 8 syntheses or guidelines pooled it.

  1. Pooled it
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  4. Preference-based measures of health-related quality of life in Indigenous people: a systematic review.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2024
    Pooled it
  5. Pooled it
  6. Wellbeing of Indigenous Peoples in Canada, Aotearoa (New Zealand) and the United States: A Systematic Review.International journal of environmental research and public health · 2021
    Pooled it
  7. Pooled it
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  9. Trial
  10. Review
  11. Article
  12. Article
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  14. Article
  15. Māori Health, Wellbeing, and Disability in Aotearoa New Zealand: A National Survey.International journal of environmental research and public health · 2025
    Article
  16. Content and face validity of preference-based quality of life instruments in indigenous youth experiencing mental health problems: a qualitative study.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2025
    Article
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  18. Review
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Blake AngellThe George Institute for Global Health, Sydney Medical School, The University of Sydney, Sydney, Australia. bangell@georgeinstitute.org.au.
Janani MuhunthanThe George Institute for Global Health, Sydney Medical School, The University of Sydney, Sydney, Australia.
Anne-Marie EadesThe George Institute for Global Health, Sydney Medical School, The University of Sydney, Sydney, Australia.
Joan CunninghamMenzies School of Health Research, Charles Darwin University, Darwin, Australia.
Gail GarveyMenzies School of Health Research, Charles Darwin University, Darwin, Australia.
Alan CassMenzies School of Health Research, Charles Darwin University, Darwin, Australia.
Kirsten HowardSchool of Public Health, University of Sydney, Sydney, Australia.
Julie RatcliffeFlinders Health Economics Group, School of Medicine, Flinders University, Adelaide, Australia.
Sandra EadesSchool of Public Health, University of Sydney, Sydney, Australia.
Stephen JanThe George Institute for Global Health, Sydney Medical School, The University of Sydney, Sydney, Australia.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

purposeIndigenous conceptions of health have been shown to differ from that of their non-Indigenous counterparts. As a result, there remains uncertainty over the appropriateness and value of using existing health-related quality-of-life (HRQoL) instruments in Indigenous communities. The objective of this review was to identify studies that either measure the HRQoL of an Indigenous population or validated a measure used to elicit the HRQoL in an Indigenous population.

methodsA systematic review of the published literature was conducted to (1) investigate the extent to which HRQoL instruments are used in Indigenous populations; (2) to identify which instruments have been validated in which populations; and (3) to identify which instruments have been tailored for use with Indigenous populations.

resultsForty-one studies were included in the review. Only three of the 41 studies utilised Indigenous-specific instruments. The remainder (38 studies) utilised generic population or disease-specific instruments. Four studies found specific HRQoL instruments to be valid in these populations and 32 estimated the HRQoL of an Indigenous population. The limited examples of Indigenous-specific instruments highlighted the potential importance to the HRQoL of these populations of domains that lie outside of traditional measures including social and community domains as well as domains relating to culture, diet and land use on top of more traditional HRQoL domains.

conclusionEnsuring that the HRQoL of Indigenous populations is being appropriately measured is vital to prioritising available resources to the most effective interventions. HRQoL instruments present an opportunity to directly elicit and incorporate Indigenous preferences and conceptions of health into these decisions. Further work is required in the field to ensure that this potential is realised.

Indexed as

Health StatusPopulation GroupsQuality of LifeCultureData CollectionHumansMEDLINEReproducibility of ResultsHealth-related quality of lifeIndigenous populationsQuality-of-life instrumentsSystematic review

Identifiers

PMID27165149

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.