SynthesisPalliative medicine2016
Current understanding of decision-making in adolescents with cancer: A narrative systematic review.
Synthesis in Palliative medicine, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 30 papers, 3 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
30 citing papers in PubMed, 3 syntheses or guidelines pooled it.
- Does letting adolescent and young adult inpatients share decisions in choosing the central-line insertion site reduce central-line-associated bloodstream infections? An empty systematic review.The journal of vascular access · 2024Pooled it
- Interventions supporting cancer patients in making decisions regarding participation in clinical trials - a systematic review.BMC cancer · 2022Pooled it
- Physician decision-making process about withholding/withdrawing life-sustaining treatments in paediatric patients: a systematic review of qualitative evidence.BMC palliative care · 2022Pooled it
- Coping Styles of Adolescents With Leukemia at a Tertiary Care Cancer Centre in India: A Qualitative Study.Psycho-oncology · 2026Article
- In their words: Experience of decision-making in adolescents with cancer - a qualitative meta-synthesis.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
- Treatment and Decision-Making Preferences of Adolescents and Young Adults With Advanced Cancer and Their Parents or Trusted Persons: An Adaptive Conjoint Analysis Study.Pediatric blood & cancer · 2025Article
- Children's cognition and attitudes during long-term cancer treatment: an ethnographic study.BMJ paediatrics open · 2024Article
- Mixed-method examination of factors associated with adolescent decision-making and involvement in care in the context of advanced cancer.Palliative & supportive care · 2024Article
- A Qualitative Analysis of the Experiences of Young Patients and Caregivers Confronting Pediatric and Adolescent Oncology Diagnosis.International journal of environmental research and public health · 2023Article
- Development of an Online Communication Skills Training Program for Oncologists Working with Adolescents and Young Adults.Journal of adolescent and young adult oncology · 2023Article
- Ethical concerns when recruiting children with cancer for research: Swedish healthcare professionals' perceptions and experiences.BMC medical ethics · 2023Article
- Co-management of communication and care in adolescent and young adult oncology.Pediatric blood & cancer · 2022Article
- Approaches for Discussing Clinical Trials with Pediatric Oncology Patients and Their Families.Current oncology reports · 2022Review
- Interdependent functions of communication with adolescents and young adults in oncology.Pediatric blood & cancer · 2022Article
- Palliative care for children and young people with stage 5 chronic kidney disease.Pediatric nephrology (Berlin, Germany) · 2022Article
- Adolescents and young adults' (AYA) views on their cancer knowledge prior to diagnosis: Findings from a qualitative study involving AYA receiving cancer care.Health expectations : an international journal of public participation in health care and health policy · 2021Article
- A meta-ethnographic study of fathers' experiences of caring for a child with a life-limiting illness.Palliative medicine · 2021Article
- Exploration of Decisional Control Preferences in Adolescents and Young Adults with Cancer and Other Complex Medical Conditions.Journal of adolescent and young adult oncology · 2020Article
- Impact of an Electronic Health Service on Child Participation in Pediatric Oncology Care: Quasiexperimental Study.Journal of medical Internet research · 2020Article
- Advances and Challenges in European Paediatric Palliative Care.Medical sciences (Basel, Switzerland) · 2020Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors.
Funding
Abstract
backgroundPolicy guidance and bioethical literature urge the involvement of adolescents in decisions about their healthcare. It is uncertain how roles and expectations of adolescents, parents and healthcare professionals influence decision-making and to what extent this is considered in guidance.
aimsTo identify recent empirical research on decision-making regarding care and treatment in adolescent cancer: (1) to synthesise evidence to define the role of adolescents, parents and healthcare professionals in the decision-making process and (2) to identify gaps in research.
designA narrative systematic review of qualitative, quantitative and mixed-methods research. We adopted a textual approach to synthesis, using a theoretical framework of interactionism to interpret findings. DATA SOURCES: The databases MEDLINE, PsycINFO, SCOPUS, EMBASE and CINHAL were searched from 2001 through May 2015 for publications on decision-making for adolescents (13-19 years) with cancer.
resultsTwenty-eight articles were identified. Adolescents and parents initially find it difficult to participate in decision-making due to a lack of options in the face of protocol-driven care. Parent and adolescent preferences for information and response to loss of control vary between individuals and over time. No studies indicate parental or adolescent preference for a high degree of independence in decision-making.
conclusionStriving to make parents and adolescents fully informed or urge them towards more independence than they prefer may add to distress and confusion. This may interfere with their ability to participate in their preferred way in decisions about care and treatment. Future research should include analysis of on-ground interactions among parents, adolescents and clinicians across the trajectory.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.